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Tag Archives: Millions Missing
Protesting Per Fink
#MEAction New York is holding a protest at Columbia University on Saturday, October 20, 2018 against the misinformation about ME that Dr. Per Fink is spreading to New York medical providers at the 4th Columbia Psychosomatics Conference. Who is Per … Continue reading
Posted in Advocacy
Tagged accountability, action, activism, anger, antiscience, CBT, delusional, denial, discredited, exercise, GET, mental illness, Millions Missing, noncompliant, occupy, politics, post-exertional malaise, priorities, psychogenic, psychosocial, represent, researchers, resist, respect, speaking out, suffering, truth
27 Comments
After The Afflicted Freak Show
Many people in the chronic disease community were anticipating Afflicted, the Netflix series about seven people with poorly understood illnesses. In light of Jamison Hill‘s appearance in the show, the ME community hoped to build on the success of Unrest … Continue reading
Posted in Commentary
Tagged ableism, accountability, coping, disability, family, invisible, living with, mental illness, Millions Missing, occupy, pain, prejudice, psychogenic, psychological, psychosocial, speaking out, suffering, visability
18 Comments
How Much Will NIH Spend in 2018?
Fiscal year 2018 is almost over, and I have calculated how much NIH is likely to spend on ME research this year. The short answer? Based on current numbers, I project a 17.6% decrease in NIH spending on ME/CFS research … Continue reading
Posted in Advocacy, Research
Tagged accountability, accuracy, action, funding, government, grant review, grants, Millions Missing, NIH, portfolio, priorities, researchers, RFA, speaking out, spending, transparency
13 Comments
The NIH Pilot Program: Wait and See
MEAction has collected thousands of signatures on a letter to Dr. Francis Collins, asking for a meeting with him and a plan of action to attack the ME public health crisis. That request is all the more urgent because NIH … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, biomarkers, blame, case definition, DHHS, funding, government, grants, IOM, Millions Missing, NIH, occupy, politics, priorities, recommendations, researchers, RFA, speaking out, spending, treatment
50 Comments
All The Time and None At All
Dr. Francis Collins, in answering a question about ME research on April 20th, said that NIH recognizes and empathizes with our suffering and our “frustration that so little is known.” Then he dropped some knowledge. Dr. Collins said, “Research, done … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, anger, biomarkers, blame, funding, government, grants, living with, Millions Missing, NIH, noncompliant, occupy, politics, priorities, researchers, RFA, speaking out, spending, suffering, transparency
58 Comments
Rest In Power, CFSAC
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) is dead. Both the website and the email listserv made the announcement on September 6th: “The charter for the Chronic Fatigue Syndrome Advisory Committee expired on September 5, 2018.” A sudden death under … Continue reading →