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Tag Archives: stress
I’ve Missed You
I’ve missed you, my lovelies! I dropped off the grid for awhile in hopes of making progress on my book. I wrote some words. I also saw some beautiful things, and visited beloved friends and family. My husband and I … Continue reading →
Posted in Occupying
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Tagged book, burnout, cello, coping, creativity, family, lessons, life, living with, love, nature, occupy, priorities, rest, strength, stress, writing
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41 Comments
Drinking From A Fire Hose
News is coming at the ME community at a crazy pace right now. Each time I go online, there is another controversial article that requires a response. First there was the NPR chronic pain piece and ensuing debacle. Then came … Continue reading →
Posted in Advocacy, Occupying
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Tagged capacity, conference, control, coping, emotional, family, friends, frustration, limitations, Millions Missing, NIH, occupy, overwhelmed, pacing, persistence, post-exertional malaise, priorities, researchers, self-care, stress, survival
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16 Comments
“It is no bad thing to celebrate a simple life.”
It’s been twenty-four years. Twenty-four years since the morning I woke up with a sore throat, went to work, and got so sick I could barely walk home. Twenty-four years since I became incurable. And this year, I hardly noticed. … Continue reading →
Posted in Occupying
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Tagged action, balance, coping, family, friends, grief, living with, occupy, persistence, personal, sickaversary, strength, stress, suffering, triumph, victory
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44 Comments
Taking Care of Your Self
Self-care is one of those internet buzzwords that people casually throw around, as if a coloring book or a kitty will solve all your problems. I’m not knocking coloring books and kitties, but generally I think that kind of advice … Continue reading →
Posted in Occupying
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Tagged action, capacity, control, coping, creativity, emotonal, exercise, family, friends, frustration, funny, laugh, limitations, living with, love, music, occupy, pacing, pain, persistence, personal, self-care, spiritual, stress, suffering, survival
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22 Comments
Better Late Than Not At All
Last night, I was really struggling to come up with anything to be grateful for. I can’t say that no one in our family died this year. I can’t say my husband is getting closer to returning to work. I … Continue reading →
Posted in Occupying, Uncategorized
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Tagged balance, coping, crash, disability, family, gratitude, grief, living with, occupy, persistence, personal, strength, stress, suffering, truth
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16 Comments
More Thoughts on Suicide
Last week, Johanna Haban provided some important resources and information for people with ME who are overwhelmed or are contemplating suicide. This topic is complicated and very important to discuss, so Johanna and I spoke further about issues related to … Continue reading →
Posted in Occupying
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Tagged community, coping, crisis, death, dying, guest post, honesty, hope, living with, occupy, pain, psychosocial, resources, speaking out, stress, suffering, suicide, support
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9 Comments
Crisis and Suicide
The list of people with ME who have taken their own lives is too long. Fortunately, there is help available for anyone in crisis, and their loved ones. There are many issues to discuss about suicide and end of life, … Continue reading →
Posted in Occupying
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Tagged community, coping, crisis, death, dying, help, honesty, living with, occupy, pain, psychosocial, resources, speaking out, stress, suffering, suicide, support
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17 Comments
23 and ME
May the depths you have reached hold you still – John O’Donohue Twenty-three years ago today, I woke up with a sore throat. I went to work, and within a few hours I had a high fever and could barely … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, coping, done, family, health, living with, occupy, persistence, personal, resist, sick, sickaversary, speaking out, strength, stress, suffering, tired, triumph, truth, victory
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43 Comments
My “Summer Vacation”
What I’ve done on my “summer vacation” has not been fun. I’ve had a rough couple of months. Non-ME health issues have gobbled up most of my capacity, and I’m still feeling the repercussions. I’m not ready to talk about … Continue reading →
Posted in Occupying
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Tagged coping, diagnosis, doctorss, essentials, health care, help, living with, occupy, pacing, preventive, priorities, self-care, stress, suffering, support
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42 Comments
How To Be Sick . . . Again!
Toni Bernhard has just published a second edition of her classic How To Be Sick, or as I like to call it: The Book That Will Make You A Better Human. I have relied on How To Be Sick since … Continue reading →