Monthly Archives: March 2012

Disaster Voyeurism

I believe in bearing witness. In many ways, that’s what Occupy CFS is about. Everyone suffers in this life, but bearing witness to another person’s suffering is a sacred act. To bear witness is to absorb the sufferer’s story, to … Continue reading

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FITNET or Fairy Dust?

There has been much buzz in the CFS community over the latest CBT (cognitive behavioral therapy) study claiming astounding recovery rates in CFS. This time, the study is called FITNET, a test of internet-based CBT for adolescents with CFS in … Continue reading

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Easy (Chick)Peasey

Once upon a time, there lived a young woman who was a foodie. She loved spending hours over a meal at the dearly departed Striped Bass. She also loved executing multi-course meals that used every pot and pan in the … Continue reading

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App for That

Dr. Esther Crawley recently announced the availability of a new iPhone app for CFS patients: ActiveME. The app is designed to help patients monitor their activity levels with the goal of identifying “boom and bust” energy cycles. I decided to … Continue reading

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The Holy Grail

Many CFS patients are holding their breath awaiting the results of the multiple lab XMRV study, nicknamed the Lipkin study after its coordinator Dr. Ian Lipkin of the Center for Infection and Immunity. I am not one of them.  I … Continue reading

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