Monthly Archives: August 2015

A Miracle, and a Break

This year has been the most difficult of my life, starting with my Mom’s passing in January. Losing her was just the first in a cascade of bad news, and I made the decision to stop maintaining that laundry list … Continue reading

Posted in Occupying | Tagged , , , , , , , , , , | 25 Comments

CFSAC Testimony, Jennie Spotila, August 18, 2015

Unfortunately, I am too sick to offer public comment by telephone for the August 18-19, 2015 meeting of the CFS Advisory Committee. I submitted these written comments for the record. Thank you to all of the advocates who are speaking … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , | 28 Comments

CDC: Speculations and Consequences

Controversy continues over the Senate appropriations committee report’s recommendation that the CDC’s CFS program funding be eliminated for FY 2016. We have certainly debated the merits and faults of the program from just about every angle on this blog. But … Continue reading

Posted in Advocacy, Commentary | Tagged , , , , , , , , , , , | 74 Comments

No CDC Funding for CFS?

ME/CFS advocates focus almost exclusively on research funding from the National Institutes of Health, and with good reason. But now it appears that funding for the Centers for Disease Control’s CFS program may be at risk in the 2016 appropriations … Continue reading

Posted in Advocacy, Commentary, Research | Tagged , , , , , , , , , , , , , , , , , , , , | 225 Comments