Tag Archives: coping

Favorite Reads of 2023

Listen, I know that everyone posted their favorite books of 2023 already. I wanted to as well, but my recovery from breast cancer surgery took longer than I anticipated, and now I’m getting radiation treatment. However, I still really want … Continue reading

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“I have cancer”

I told my husband last week, “It’s just as hard to tell people you have cancer as it is to find out you have cancer in the first place.” So, let me take a deep breath and say: I have … Continue reading

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I got sick on October 6, 1994. Writing a memoir that spans almost three decades requires a lot of self-reflection, not only about what I’ve been through but about the choices I made, what I got wrong, and what I … Continue reading

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Lightning Book Review: Crip Up The Kitchen

I’ve loved to cook since I was a kid. I wanted to grow up to throw fancy dinner parties like my aunt, complete with appetizers and an elaborate dessert. And I did give some pretty awesome dinner parties, with menus … Continue reading

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Favorite Reads of 2022

Books are one of my favorite things, and I love to talk about them. Every reader is unique, of course, and we each have a wheelhouse–characteristics that will make us love (or hate) a book. Maybe you love stories about … Continue reading

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In The World

I have spent more time in public in the last month than I have in two-and-a-half years. We were having some work done on the house, and I could not stay there in the midst of the noise, dust, and … Continue reading

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Ten Years of Unreal Time

Ten years ago today, I tapped the internet microphone and published the very first post on this blog, then known as Occupy CFS. My intention was to step into the light, to bring attention to the disease by writing openly … Continue reading

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My Favorite Books of 2021

I have always loved books, and now that I am writing one myself, I love them even more. I read for entertainment and education, and I pick them apart to see what makes them work (or not). There is nothing … Continue reading

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Community Gratitude

Talking about gratitude on Thanksgiving Day (in the U.S.) is cliche, I know. But I have to chime in because this year, I am feeling overwhelming gratitude for my communities. I have been blessed in my family and friends for … Continue reading

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Do We Ever Stop Counting?

I have been sick for twenty-seven years, today. My sickaversary gives rise to different feelings every year. Burdened. Triumphant. Heartsick. Contented. Marking the day, here with you or on my own, feels important. October 6th is the day my life … Continue reading

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