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Category Archives: Occupying
Not Again
It was never my intention to use this blog for personal medical news. I wanted to write about the world of ME in general, not just my personal experience of it. And I never expected that other personal health issues … Continue reading →
Posted in Occupying
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Tagged anger, cancer, coping, family, frustration, healing, health, hope, hysterectomy, life, living with, PEM, persistence, personal, recovery, sick, strength, stress, suffering, surgery
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28 Comments
Lessons From My Mother
Eleven years ago today, my mother died. I can’t believe it’s been that long. Ten years ago, I wrote a list in my journal of some of the things she taught me. It was a brain dump, an attempt to … Continue reading →
Posted in Occupying
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Tagged coping, family, gratitude, grief, learning, lessons, live, living with, occupy, persistence, personal, speaking out, strength, suffering, thrive
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19 Comments
Getting Through the Holidays with ME
My dad saw me addressing holiday cards a few days after Thanksgiving. “You’re SO organized!” he said, half admiringly and half chidingly. Law school accentuated my natural tendency to be organized, but ME made it more intense. “I HAVE to … Continue reading →
Posted in Occupying
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Tagged family, holidays, living with, love, pacing, PEM, rest, schedule
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6 Comments
Getting a Normal Result
It’s been a year since my breast cancer diagnosis. While I feel like I have finally recovered from treatment, that doesn’t mean my cancer experience is over. I am on medication to prevent a recurrence, and of course, I still … Continue reading →
Waylaid
Almost five years after the first cases of COVID-19 in China, I finally got it. Honestly, I expected this test to be positive for flu. My husband and I had been testing COVID negative on rapid antigen tests for days. … Continue reading →
Posted in Occupying
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Tagged adjusting, capacity, covid-19, living with, Long COVID, pacing, PEM, rest, sick, writing
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9 Comments
Hello, Stranger
When I was diagnosed with breast cancer last October, I had grand plans: I would blog through my surgery and whatever treatment followed. I was hungry for examples of other people with ME who had been through cancer treatment, especially … Continue reading →
Enough
I’ve been waiting until I felt well enough to post about my breast cancer surgery and recovery, about the treatment I will begin in January. I have words to say about experiencing the healthcare system as a person with cancer … Continue reading →
“I have cancer”
I told my husband last week, “It’s just as hard to tell people you have cancer as it is to find out you have cancer in the first place.” So, let me take a deep breath and say: I have … Continue reading →
Posted in Occupying
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Tagged cancer, coping, crash, health, life, living with, PEM, persistence, personal, sick, strength, stress, suffering
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56 Comments
29
I got sick on October 6, 1994. Writing a memoir that spans almost three decades requires a lot of self-reflection, not only about what I’ve been through but about the choices I made, what I got wrong, and what I … Continue reading →
Posted in Occupying
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Tagged anniversary, coping, grief, health, life, living with, occupy, persistence, personal, recovery, sick, sickaversary, strength, stress, suffering, triumph, truth
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11 Comments
How to Avoid Covid
For the first time in three weeks, I live in a Covid-free house. Day 0: My husband was the first to get sick. He woke up with severe congestion and a headache, but tested negative for Covid on an antigen … Continue reading →
Posted in Occupying
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Tagged caregiver, covid-19, family, healthcare, living with, masks, occupy, pandemic, self-care, sick
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6 Comments