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Tag Archives: crash
Getting a Normal Result
It’s been a year since my breast cancer diagnosis. While I feel like I have finally recovered from treatment, that doesn’t mean my cancer experience is over. I am on medication to prevent a recurrence, and of course, I still … Continue reading →
Hello, Stranger
When I was diagnosed with breast cancer last October, I had grand plans: I would blog through my surgery and whatever treatment followed. I was hungry for examples of other people with ME who had been through cancer treatment, especially … Continue reading →
“I have cancer”
I told my husband last week, “It’s just as hard to tell people you have cancer as it is to find out you have cancer in the first place.” So, let me take a deep breath and say: I have … Continue reading →
Posted in Occupying
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Tagged cancer, coping, crash, health, life, living with, PEM, persistence, personal, sick, strength, stress, suffering
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56 Comments
How You Doin’?
How are you in these quaran-times, my friends? My husband and I are doing everything possible to avoid infection because we know how scary COVID-19 can be. I have not left my house for anything except short walks in more … Continue reading →
Posted in Occupying
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Tagged coping, covid-19, crash, family, help, living with, pain, pandemic, PEM, quarantine, sars, suffering, volunteer
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5 Comments
Sacrifice
I’ve lost count of the number of masks I’ve sewn. More than sixty, at least. I was sewing even before the CDC recommended that everyone wear masks, because I knew that my husband and I needed them. When the official … Continue reading →
Posted in Occupying
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Tagged cop, covid-19, crash, help, pain, PEM, quarantine, sars, social isolation, volunteer
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6 Comments
Better Late Than Not At All
Last night, I was really struggling to come up with anything to be grateful for. I can’t say that no one in our family died this year. I can’t say my husband is getting closer to returning to work. I … Continue reading →
Posted in Occupying, Uncategorized
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Tagged balance, coping, crash, disability, family, gratitude, grief, living with, occupy, persistence, personal, strength, stress, suffering, truth
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16 Comments
Viral
I had it all under control. After coming down with a virus (mild flu?) in January, I got the message and seriously scaled back my activity. Joe Landson, Denise Lopez-Majano, and Claudia Goodell all came through for me in a … Continue reading →
Posted in Occupying
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Tagged coping, crash, infections, living with, occupy, post-exertional malaise, suffering
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20 Comments
Guest Post: Frustration
I continue to struggle with the crash from hell, but Denise Lopez-Majano has graciously provided a guest post. Her thoughts on ME-frustration are right on target for me this week! As a caregiver for her two adult sons, Denise is … Continue reading →
Posted in Occupying
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Tagged coping, crash, frustration, living with, occupy, post-exertional malaise, speaking out, stress, suffering
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29 Comments
The Finger
Last week, my body gave me the finger. I can’t even say I didn’t deserve it. After more than 19 years, I still don’t always listen to my body and this makes her very, very angry with me. I’ve previously … Continue reading →
Posted in Occupying
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Tagged coping, crash, living with, occupy, post-exertional malaise, suffering
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44 Comments
I Thank You
When I uploaded my Crash Day 3 video on Monday, I was scared. In fact, I almost didn’t do it. I can’t control the fact that I have crashes, but I can control who sees me that way. Like most … Continue reading →
Posted in Advocacy, Occupying
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Tagged action, coping, crash, FDA, living with, occupy, post-exertional malaise, speaking out, suffering
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5 Comments