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Tag Archives: balance
Do We Ever Stop Counting?
I have been sick for twenty-seven years, today. My sickaversary gives rise to different feelings every year. Burdened. Triumphant. Heartsick. Contented. Marking the day, here with you or on my own, feels important. October 6th is the day my life … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, coping, family, grief, living with, occupy, persistence, personal, sick, sickaversary, strength, stress, suffering, tired, triumph, truth
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15 Comments
“It is no bad thing to celebrate a simple life.”
It’s been twenty-four years. Twenty-four years since the morning I woke up with a sore throat, went to work, and got so sick I could barely walk home. Twenty-four years since I became incurable. And this year, I hardly noticed. … Continue reading →
Posted in Occupying
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Tagged action, balance, coping, family, friends, grief, living with, occupy, persistence, personal, sickaversary, strength, stress, suffering, triumph, victory
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44 Comments
Better Late Than Not At All
Last night, I was really struggling to come up with anything to be grateful for. I can’t say that no one in our family died this year. I can’t say my husband is getting closer to returning to work. I … Continue reading →
Posted in Occupying, Uncategorized
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Tagged balance, coping, crash, disability, family, gratitude, grief, living with, occupy, persistence, personal, strength, stress, suffering, truth
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16 Comments
23 and ME
May the depths you have reached hold you still – John O’Donohue Twenty-three years ago today, I woke up with a sore throat. I went to work, and within a few hours I had a high fever and could barely … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, coping, done, family, health, living with, occupy, persistence, personal, resist, sick, sickaversary, speaking out, strength, stress, suffering, tired, triumph, truth, victory
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43 Comments
Another Reason to Stay
My Mom played the cello every day, even while enduring chemotherapy. Her last lesson was less than two months before she died. Mom loved the cello, but I never really understood her dedication. Even when I took piano lessons as … Continue reading →
Posted in Occupying
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Tagged balance, cello, coping, family, grief, learning, live, living with, music, occupy, persistence, personal, speaking out, strength, suffering, thrive, triumph, victory
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31 Comments
21
October 6, 2015 was my 21st “sickaversary.” I know the date because the onset of ME/CFS in my case was so sudden and dramatic. Not a single doctor told me that I could be sick for years. Not a single … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, caregiver, family, health, living with, persistence, personal, sickaversary, strength, stress, stroke, suffering, triumph, victory
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49 Comments
A Miracle, and a Break
This year has been the most difficult of my life, starting with my Mom’s passing in January. Losing her was just the first in a cascade of bad news, and I made the decision to stop maintaining that laundry list … Continue reading →
The Wall of Nope
I have reached a new low in life with ME. I call it: The Wall of Nope. The Wall of Nope is not a physical crash. It’s an inability to deal with obligations and necessary things. Here’s an example: I’m … Continue reading →