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Tag Archives: anniversary
29
I got sick on October 6, 1994. Writing a memoir that spans almost three decades requires a lot of self-reflection, not only about what I’ve been through but about the choices I made, what I got wrong, and what I … Continue reading →
Posted in Occupying
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Tagged anniversary, coping, grief, health, life, living with, occupy, persistence, personal, recovery, sick, sickaversary, strength, stress, suffering, triumph, truth
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11 Comments
Do We Ever Stop Counting?
I have been sick for twenty-seven years, today. My sickaversary gives rise to different feelings every year. Burdened. Triumphant. Heartsick. Contented. Marking the day, here with you or on my own, feels important. October 6th is the day my life … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, coping, family, grief, living with, occupy, persistence, personal, sick, sickaversary, strength, stress, suffering, tired, triumph, truth
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15 Comments
One Dance: Millions Missing 2018
I was never a talented dancer, but I loved it. I quit ballet lessons when I was in the 3rd grade because it was hard. I struggled to learn the simple choreography in school musical productions. I never learned to … Continue reading →
Posted in Advocacy, Occupying
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Tagged accountability, action, activism, anniversary, coping, family, funding, government, grants, grief, living with, loss, medical education, Millions Missing, NIH, occupy, politics, post-exertional malaise, priorities, speaking out, spending, suffering, treatment
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23 Comments
23 and ME
May the depths you have reached hold you still – John O’Donohue Twenty-three years ago today, I woke up with a sore throat. I went to work, and within a few hours I had a high fever and could barely … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, coping, done, family, health, living with, occupy, persistence, personal, resist, sick, sickaversary, speaking out, strength, stress, suffering, tired, triumph, truth, victory
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43 Comments
21
October 6, 2015 was my 21st “sickaversary.” I know the date because the onset of ME/CFS in my case was so sudden and dramatic. Not a single doctor told me that I could be sick for years. Not a single … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, caregiver, family, health, living with, persistence, personal, sickaversary, strength, stress, stroke, suffering, triumph, victory
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49 Comments
19
Nineteen years ago today, I woke up with a sore throat. I ignored it, as I usually did with pain or illness. I was 26 years old, a “superstar” at my law firm (according to a performance review). I don’t … Continue reading →
Posted in Occupying
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Tagged anniversary, coping, faith, living with, prayer, sickaversary, spiritual, strength, suffering
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24 Comments