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Author Archives: Jennie Spotila
NIH Funding for ME Needs Life Support
Fiscal year 2019 is over, and we can now examine how much NIH spent on ME research. In previous years, I’ve broken down the funding at a granular level. I have done that in a separate post for those who … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, activism, conference, council, funding, government, grants, Millions Missing, NIH, occupy, politics, priorities, researchers, RFA, speaking out, spending
2 Comments
NIH Funding for ME in 2019: The Details
Every year, I take a careful look at the funding that NIH reports it spent on ME research. Normally, this is mostly a number crunching exercise, but this year I wrote an entire post about a serious problem I discovered … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, biomarkers, funding, government, grants, NIH, pathogenesis, politics, priorities, researchers, RFA, speaking out, spending, suffering, treatment
12 Comments
I’ll Make It Simple
Dr. Jose Montoya has been fired from Stanford University after an investigation into alleged violations of Stanford’s rules of conduct, including sexual harassment, misconduct and assault. The Stanford Daily published an anonymous statement from a group of people affected by … Continue reading
Posted in Commentary
Tagged accountability, anger, assault, coping, harassment, occupy, priorities, speaking out, Stanford, suffering
63 Comments
Another NIH Funding Fact Check
In April 2019, NIH finally published their funding numbers for ME/CFS research in 2018. That means it is time for another fact-check and correction! Update October 16, 2019: as explained below, I received more accurate numbers from NIH and have … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, activism, funding, government, grants, NIH, occupy, politics, priorities, researchers, RFA, speaking out, spending
16 Comments
I Want To Believe Dr. Collins, But I Don’t
Dr. Francis Collins, Director of the National Institutes of Health, spoke to the ME community earlier this month at the meeting on Accelerating Research on ME/CFS. For the ten minutes he was present, Dr. Collins said a lot of nice … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, Collins, funding, government, grants, Millions Missing, NIH, politics, priorities, recommendations, researchers, RFA, speaking out, spending
24 Comments
Safety In Isolation
The COVID-19 pandemic has expanded dramatically in the last two weeks. I won’t attempt to summarize everything that has happened; there’s too much. Instead, I have gathered some information that I hope will be helpful to people with ME and … Continue reading →