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Tag Archives: personal
23 and ME
May the depths you have reached hold you still – John O’Donohue Twenty-three years ago today, I woke up with a sore throat. I went to work, and within a few hours I had a high fever and could barely … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, coping, done, family, health, living with, occupy, persistence, personal, resist, sick, sickaversary, speaking out, strength, stress, suffering, tired, triumph, truth, victory
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43 Comments
Another Reason to Stay
My Mom played the cello every day, even while enduring chemotherapy. Her last lesson was less than two months before she died. Mom loved the cello, but I never really understood her dedication. Even when I took piano lessons as … Continue reading →
Posted in Occupying
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Tagged balance, cello, coping, family, grief, learning, live, living with, music, occupy, persistence, personal, speaking out, strength, suffering, thrive, triumph, victory
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31 Comments
21
October 6, 2015 was my 21st “sickaversary.” I know the date because the onset of ME/CFS in my case was so sudden and dramatic. Not a single doctor told me that I could be sick for years. Not a single … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, caregiver, family, health, living with, persistence, personal, sickaversary, strength, stress, stroke, suffering, triumph, victory
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49 Comments
A Miracle, and a Break
This year has been the most difficult of my life, starting with my Mom’s passing in January. Losing her was just the first in a cascade of bad news, and I made the decision to stop maintaining that laundry list … Continue reading →
The Wall of Nope
I have reached a new low in life with ME. I call it: The Wall of Nope. The Wall of Nope is not a physical crash. It’s an inability to deal with obligations and necessary things. Here’s an example: I’m … Continue reading →