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Tag Archives: NIH
RFA Ticker, 11/7/16
We learned a bit more about NIH’s plans for ME/CFS RFAs during last week’s NIH telebriefing. In response to a comment from Bob Miller, Dr. Koroshetz said that funding for the research consortia centers will be “significant” and “equivalent to … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
4 Comments
2016 NIH Spending on ME/CFS Studies
Update: This post was revised on March 12, 2018 to reflect the addition of intramural research to the total. When I analyzed NIH’s spending on ME/CFS studies in Fiscal Year 2015, I concluded: The bottom line is that NIH is … Continue reading
Posted in Advocacy, Research
Tagged accountability, biomarkers, funding, government, grants, NIH, orthostatic intolerance, politics, post-exertional malaise, priorities, researchers, speaking out, spending
7 Comments
RFA Ticker, 10/31/16
Among the $53 million in RFAs issued by NIH last week were two RFAs for pilot clinical trials in pediatric chronic kidney disease. These are significant for us because the RFAs establish a network of three participating clinical centers and … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
5 Comments
RFA Ticker, 10/24/16
Another huge week for RFAs at NIH! Last week alone, NIH issued 17 RFAs for a total of more than $94 million. ME/CFS research did not get an RFA, but we did get official news about the RFAs promised us … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
9 Comments
RFA Ticker, 10/17/16
Have you heard the expression “Go big or go home?” That is the perfect description of last week’s RFA totals. NIH only issued one RFA last week, but it was a big one. The set aside funding of $28,750,000 more … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
8 Comments
Tasha
There are many beautiful, powerful images from the September 27th Millions Missing protests. My friend Tasha spoke at the #MillionsMissing New York City event, and I’m proud to share her comments with you here. Hi, my name is Tasha and … Continue reading
Posted in Advocacy
Tagged action, funding, government, name, NIH, occupy, orthostatic intolerance, politics, post-exertional malaise, priorities, speaking out, spending, suffering, testimony, treatment
8 Comments
Collins Responds to Congress
In September, fifty-five members of the House of Representatives sent NIH Director Dr. Francis Collins a letter in support of more ME/CFS research. Dr. Collins has now responded, but it is hardly satisfactory. You may recall that Representatives Lofgren and … Continue reading
Posted in Advocacy
Tagged accountability, action, Collins, Congress, funding, government, NIH, politics, priorities, recommendations, speaking out, spending, treatment
11 Comments
RFA Ticker, 10/10/16
It’s a new year (in Washington DC, anyway). I didn’t have to turn the RFA Ticker back to zero, since that is where it was all of FY 2016. But here we are, so let’s get started on FY 2017. … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, researchers, RFA, RFA Ticker, speaking out, spending
6 Comments
Enough Is Enough
After I pointed out to Dr. Walter Koroshetz, Chair of the Trans-NIH ME/CFS Working Group, that NIH had invited a speaker who has publicly insulted people with ME/CFS and anyone who takes this disease seriously, Dr. Koroshetz responded that “inclusion … Continue reading →