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Tag Archives: love
Getting Through the Holidays with ME
My dad saw me addressing holiday cards a few days after Thanksgiving. “You’re SO organized!” he said, half admiringly and half chidingly. Law school accentuated my natural tendency to be organized, but ME made it more intense. “I HAVE to … Continue reading →
Posted in Occupying
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Tagged family, holidays, living with, love, pacing, PEM, rest, schedule
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6 Comments
Enough
I’ve been waiting until I felt well enough to post about my breast cancer surgery and recovery, about the treatment I will begin in January. I have words to say about experiencing the healthcare system as a person with cancer … Continue reading →
Community Gratitude
Talking about gratitude on Thanksgiving Day (in the U.S.) is cliche, I know. But I have to chime in because this year, I am feeling overwhelming gratitude for my communities. I have been blessed in my family and friends for … Continue reading →
Posted in Occupying
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Tagged advocacy, coping, family, friends, gratitude, long haulers, love, support, Thanksgiving
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6 Comments
I’ve Missed You
I’ve missed you, my lovelies! I dropped off the grid for awhile in hopes of making progress on my book. I wrote some words. I also saw some beautiful things, and visited beloved friends and family. My husband and I … Continue reading →
Posted in Occupying
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Tagged book, burnout, cello, coping, creativity, family, lessons, life, living with, love, nature, occupy, priorities, rest, strength, stress, writing
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41 Comments
The Best Holiday Ever
Getting a puppy was not in the plan. My husband and I already had a dog (Fargo) and a cat (Lucas). The plan was for my parents to pick out a dog, and I just went along to help since … Continue reading →
Posted in Occupying
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Tagged adapting, coping, disability, dog, doggo, family, grief, joy, life, living with, loss, love, personal, pets, pupper, shining light, strength
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20 Comments
Taking Care of Your Self
Self-care is one of those internet buzzwords that people casually throw around, as if a coloring book or a kitty will solve all your problems. I’m not knocking coloring books and kitties, but generally I think that kind of advice … Continue reading →
Posted in Occupying
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Tagged action, capacity, control, coping, creativity, emotonal, exercise, family, friends, frustration, funny, laugh, limitations, living with, love, music, occupy, pacing, pain, persistence, personal, self-care, spiritual, stress, suffering, survival
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22 Comments
Unrest: Movie Review
Spoiler alert: This review discusses some specific scenes from Unrest. Edited to add: No, really! There are SPOILERS here! If you want to see and experience the film with a blank slate, then go see the film and come back … Continue reading →
Posted in Commentary, Occupying
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Tagged activism, advocacy, coping, family, film, gratitude, grief, living with, loss, love, Millions Missing, movie, occupy, orthostatic intolerance, pacing, pain, post-exertional malaise, review, speaking out, suffering, testimony, treatment, unrest
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15 Comments
“Take Care Of Each Other”
“Take care of each other.” Those were the closing words in Anne Ortegren’s suicide letter. Anne’s death came as a shock to many of us, myself included. Anne was a friend and long-time supporter of my work. She made a … Continue reading →