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Tag Archives: caregiver
How to Avoid Covid
For the first time in three weeks, I live in a Covid-free house. Day 0: My husband was the first to get sick. He woke up with severe congestion and a headache, but tested negative for Covid on an antigen … Continue reading →
Posted in Occupying
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Tagged caregiver, covid-19, family, healthcare, living with, masks, occupy, pandemic, self-care, sick
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6 Comments
The Wall of Nope
I have reached a new low in life with ME. I call it: The Wall of Nope. The Wall of Nope is not a physical crash. It’s an inability to deal with obligations and necessary things. Here’s an example: I’m … Continue reading →
Posted in Commentary, Occupying
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Tagged balance, caregiver, coping, depression, emergency, family, health, living with, occupy, pain, personal, post-exertional malaise, priorities, stress, stroke, suffering
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44 Comments
21
October 6, 2015 was my 21st “sickaversary.” I know the date because the onset of ME/CFS in my case was so sudden and dramatic. Not a single doctor told me that I could be sick for years. Not a single … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, caregiver, family, health, living with, persistence, personal, sickaversary, strength, stress, stroke, suffering, triumph, victory
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49 Comments
A Miracle, and a Break
This year has been the most difficult of my life, starting with my Mom’s passing in January. Losing her was just the first in a cascade of bad news, and I made the decision to stop maintaining that laundry list … Continue reading →
Safety In Isolation
The COVID-19 pandemic has expanded dramatically in the last two weeks. I won’t attempt to summarize everything that has happened; there’s too much. Instead, I have gathered some information that I hope will be helpful to people with ME and … Continue reading →