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Tag Archives: sick
Getting a Normal Result
It’s been a year since my breast cancer diagnosis. While I feel like I have finally recovered from treatment, that doesn’t mean my cancer experience is over. I am on medication to prevent a recurrence, and of course, I still … Continue reading →
Waylaid
Almost five years after the first cases of COVID-19 in China, I finally got it. Honestly, I expected this test to be positive for flu. My husband and I had been testing COVID negative on rapid antigen tests for days. … Continue reading →
Posted in Occupying
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Tagged adjusting, capacity, covid-19, living with, Long COVID, pacing, PEM, rest, sick, writing
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9 Comments
Hello, Stranger
When I was diagnosed with breast cancer last October, I had grand plans: I would blog through my surgery and whatever treatment followed. I was hungry for examples of other people with ME who had been through cancer treatment, especially … Continue reading →
“I have cancer”
I told my husband last week, “It’s just as hard to tell people you have cancer as it is to find out you have cancer in the first place.” So, let me take a deep breath and say: I have … Continue reading →
Posted in Occupying
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Tagged cancer, coping, crash, health, life, living with, PEM, persistence, personal, sick, strength, stress, suffering
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56 Comments
29
I got sick on October 6, 1994. Writing a memoir that spans almost three decades requires a lot of self-reflection, not only about what I’ve been through but about the choices I made, what I got wrong, and what I … Continue reading →
Posted in Occupying
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Tagged anniversary, coping, grief, health, life, living with, occupy, persistence, personal, recovery, sick, sickaversary, strength, stress, suffering, triumph, truth
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11 Comments
How to Avoid Covid
For the first time in three weeks, I live in a Covid-free house. Day 0: My husband was the first to get sick. He woke up with severe congestion and a headache, but tested negative for Covid on an antigen … Continue reading →
Posted in Occupying
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Tagged caregiver, covid-19, family, healthcare, living with, masks, occupy, pandemic, self-care, sick
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6 Comments
Do We Ever Stop Counting?
I have been sick for twenty-seven years, today. My sickaversary gives rise to different feelings every year. Burdened. Triumphant. Heartsick. Contented. Marking the day, here with you or on my own, feels important. October 6th is the day my life … Continue reading →
Posted in Occupying
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Tagged anniversary, balance, break, coping, family, grief, living with, occupy, persistence, personal, sick, sickaversary, strength, stress, suffering, tired, triumph, truth
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15 Comments
Safety In Isolation
The COVID-19 pandemic has expanded dramatically in the last two weeks. I won’t attempt to summarize everything that has happened; there’s too much. Instead, I have gathered some information that I hope will be helpful to people with ME and … Continue reading →
Posted in Commentary, Occupying
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Tagged caregiver, coping, covid-19, infections, living with, plan ahead, public health, sars, self-care, sick, virus
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9 Comments
A New Virus and ME
Updated: March 3, 2020 There is a new coronavirus circulating the globe, and there are quarantines of different sizes in multiple countries. This has led to great anxiety in financial markets, the media, and in communities. And you might be … Continue reading →
Posted in Occupying
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Tagged coping, covid-19, infections, influenza, living with, plan ahead, preparation, public health, sars, sick, virus
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36 Comments
How To Stay At Home
One thing I have learned during the COVID-19 pandemic is that people with chronic illness have a lot to teach healthy people. We have the skills and hard-earned experience of coping with social isolation and restrictions on what we want … Continue reading →