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Tag Archives: respect
A Million More, and Counting
Today is #MillionsMissing, a worldwide day of protest and awareness for the millions of people missing from their lives due to ME. We raise our voices on behalf of our own community, and also on behalf of our compatriots with … Continue reading
Posted in Advocacy
Tagged accountability, action, activism, covid-19, disability, government, Long COVID, long haulers, loss, Millions Missing, politics, priorities, respect, speaking out, suffering, visability
13 Comments
Protesting Per Fink
#MEAction New York is holding a protest at Columbia University on Saturday, October 20, 2018 against the misinformation about ME that Dr. Per Fink is spreading to New York medical providers at the 4th Columbia Psychosomatics Conference. Who is Per … Continue reading
Posted in Advocacy
Tagged accountability, action, activism, anger, antiscience, CBT, delusional, denial, discredited, exercise, GET, mental illness, Millions Missing, noncompliant, occupy, politics, post-exertional malaise, priorities, psychogenic, psychosocial, represent, researchers, resist, respect, speaking out, suffering, truth
27 Comments
Preconditions, Burdens and Ableism
Who are we, as people with ME? Are we “patients”? Are we defined by the disease and its impact on our lives? Which comes first: me or ME? This is a question of identity, and how language can bestow or … Continue reading
Posted in Commentary
Tagged ableism, Denver Principles, disability, health care, identity, language, living with, occupy, politics, protest, respect, speaking out
18 Comments
The Proverbial Olive Branch
In what will probably be the last word from NIH on the invited lecture by Dr. Edward Shorter, the Trans-NIH ME/CFS Working Group has issued a follow up response to the ME community. For background, read my open letter to … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, antiscience, biomarkers, CBT, delusional, denial, DHHS, discredited, funding, government, IOM, NIH, partnership, politics, priorities, psychogenic, psychosocial, researchers, respect, speaking out, spending
21 Comments
Rest In Power, CFSAC
The Chronic Fatigue Syndrome Advisory Committee (CFSAC) is dead. Both the website and the email listserv made the announcement on September 6th: “The charter for the Chronic Fatigue Syndrome Advisory Committee expired on September 5, 2018.” A sudden death under … Continue reading →