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Tag Archives: pacing
Imperfect
I’ve had a craptastic week. Three crash days, including one that involved a three hour “nap.” I don’t understand what triggered these crash days, but I never do. Usually, crash days take me by surprise because whatever activity I’ve been … Continue reading →
Posted in Occupying
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Tagged anaerobic, coping, CPET, crash, friends, heart rate monitor, living with, occupy, pacing, post-exertional malaise, support
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11 Comments
Adapting
I remember my mother and grandmother canning every year. My grandmother would put up jars of peach halves and applesauce, and my mother made strawberry jam. It always seemed like a silly waste of time to me, since you can … Continue reading →
Posted in Occupying
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Tagged adapting, cooking, coping, CPET, heart rate monitor, hobbies, kitchen, living with, occupy, pacing, post-exertional malaise
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3 Comments
Preemptive Rest
I continue to wear my heart rate monitor every day, and generally listen to its alarm. When it starts to sound, I sit down (although not instantaneously I will admit). And when I hit the part of the day where … Continue reading →
Posted in Occupying
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Tagged anaerobic, coping, CPET, heart rate monitor, living with, pacing, post-exertional malaise, rest, schedule
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12 Comments
Spontaneity
I’ve always been a planner, and living with CFS wreaks havoc on plans. I never know if I’ll be able to follow through on plans, big or small. I missed my cousin’s high school graduation, and at least three weddings … Continue reading →
Posted in Occupying
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Tagged anaerobic, coping, CPET, happy, heart rate monitor, living with, occupy, pacing, post-exertional malaise
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2 Comments
Can’t Drive 95
Almost as soon as I had decided to raise the limit on my heart rate monitor to 105 beats per minute, my physical therapy team smacked that idea down. They told me that one week with the monitor was not … Continue reading →
Posted in Occupying
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Tagged anaerobic, coping, CPET, exercise, heart rate monitor, living with, occupy, pacing, pain, post-exertional malaise, stress, suffering
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26 Comments
Raising the Limit
I feel like I am getting close to baseline, the state I was in prior to the exercise testing. It’s taken almost seven weeks, and in that time I have left my house a total of seven times – 5 … Continue reading →
Posted in Occupying
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Tagged anaerobic, coping, CPET, exercise, GET, heart rate monitor, isolation, living with, occupy, orthostatic intolerance, pacing, post-exertional malaise
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9 Comments
Significance of AT
Now that my exercise tests are finished and I have the results, it’s time to figure out what to do about it. I’m relying on the work of Staci Stevens, Chris Snell and others at the Pacific Fatigue Lab who … Continue reading →
Posted in Occupying
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Tagged anaerobic, coping, CPET, exercise, GET, living with, orthostatic intolerance, pacing, post-exertional malaise
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3 Comments
And the Envelope, Please
My exercise test results are in. The numbers were, quite frankly, shocking. Two numbers – VO2max and anaerobic threshold – provide the evidence that I have significant metabolic dysfunction, and I’ll try to explain what they mean. Check out my … Continue reading →
Posted in Occupying
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Tagged anaerobic, coping, CPET, exercise, living with, pacing, post-exertional malaise
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13 Comments
Recoverin’
Three weeks ago, I had my exercise stress tests. A friend had cautioned me that it could take three weeks to recover, and I think she was right although I did sabotage myself a little bit, as I’ll explain. I … Continue reading →
Posted in Occupying
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Tagged anaerobic, bed rest, bedridden, coping, CPET, exercise, GET, IV fluids, living with, occupy, orthostatic intolerance, pacing, pain, patience, post-exertional malaise, Raggedy Ann, stress, suffering
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6 Comments
Tips for a CFS Vacation
My husband and I were fortunate enough to take a vacation to New Orleans last month, and I am still recovering. But I did want to share what I learned (or re-learned) on this trip about traveling with CFS. I … Continue reading →
Posted in Occupying
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Tagged coping, easy, living with, New Orleans, pacing, post-exertional malaise, travel, wheelchair
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9 Comments