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Tag Archives: choices
Missing, Not Marching
I should be marching right now. I mean, I had my plans all worked out. #MillionsMissing tshirt? Check. Wheelchair wheels freshly pumped up? Check. Water and food? Check. Ride to March? Check. Kick ass awesome sign made by my husband? … Continue reading →
Posted in Advocacy, Occupying
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Tagged action, choices, funding, government, grants, living with, march, March for Science, Millions Missing, NIH, occupy, pain, politics, priorities, protest, reality, researchers, resist, speaking out, suffering
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31 Comments
Blaze of Glory
Pacing is . . . actually, my descriptions of pacing generally involve expletives that are not appropriate for this blog, so we’ll stick with “Pacing is challenging.” One positive side effect of my pacing efforts, though, is that I am … Continue reading →
Posted in Occupying
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Tagged choices, confused, coping, friends, heart rate monitor, living with, normalcy, orthostatic intolerance, pacing, pain, post-exertional malaise, risk, suffering
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13 Comments
Pandemic Low
I hit a new pandemic low last week. CDC Director Walensky’s comments about the “encouraging” news that most vaccinated people dying of COVID had multiple comorbidities was the catalyst (see my op ed in the Philadelphia Inquirer), but my despair … Continue reading →