Tag Archives: occupy

Enough

Posted on December 22, 2023 by Jennie Spotila

I’ve been waiting until I felt well enough to post about my breast cancer surgery and recovery, about the treatment I will begin in January. I have words to say about experiencing the healthcare system as a person with cancer … Continue reading →

Posted in Occupying | Tagged , , , , , , , , , , , , , , , , | 11 Comments

29

Posted on October 7, 2023 by Jennie Spotila

I got sick on October 6, 1994. Writing a memoir that spans almost three decades requires a lot of self-reflection, not only about what I’ve been through but about the choices I made, what I got wrong, and what I … Continue reading →

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How to Avoid Covid

Posted on October 9, 2022 by Jennie Spotila

For the first time in three weeks, I live in a Covid-free house. Day 0: My husband was the first to get sick. He woke up with severe congestion and a headache, but tested negative for Covid on an antigen … Continue reading →

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Do We Ever Stop Counting?

Posted on October 6, 2021 by Jennie Spotila

I have been sick for twenty-seven years, today. My sickaversary gives rise to different feelings every year. Burdened. Triumphant. Heartsick. Contented. Marking the day, here with you or on my own, feels important. October 6th is the day my life … Continue reading →

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Always Another Chance

Posted on July 14, 2020 by Jennie Spotila

Toni Bernhard has published a new book, How To Be Sick: Your Pocket Companion. Whether you have read Toni’s other books or not, I think you will find this one to be the perfect fit. This book is not a … Continue reading →

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A New Year (With Cake)

Posted on January 2, 2020 by Jennie Spotila

In the last weeks of 2019, social media was full of people talking about their accomplishments of the last decade, or what they were most proud of, or the biggest changes they made. These posts made me feel terrible. What … Continue reading →

Posted in Occupying | Tagged , , , , , , | 17 Comments

NIH Funding for ME Needs Life Support

Posted on November 7, 2019 by Jennie Spotila

Fiscal year 2019 is over, and we can now examine how much NIH spent on ME research. In previous years, I’ve broken down the funding at a granular level. I have done that in a separate post for those who … Continue reading →

Posted in Advocacy, Commentary, Research | Tagged , , , , , , , , , , , , , , , , | 2 Comments

I’ve Missed You

Posted on August 17, 2019 by Jennie Spotila

I’ve missed you, my lovelies! I dropped off the grid for awhile in hopes of making progress on my book. I wrote some words. I also saw some beautiful things, and visited beloved friends and family. My husband and I … Continue reading →

Posted in Occupying | Tagged , , , , , , , , , , , , , , , , | 41 Comments

I’ll Make It Simple

Posted on June 5, 2019 by Jennie Spotila

Dr. Jose Montoya has been fired from Stanford University after an investigation into alleged violations of Stanford’s rules of conduct, including sexual harassment, misconduct and assault. The Stanford Daily published an anonymous statement from a group of people affected by … Continue reading →

Posted in Commentary | Tagged , , , , , , , , , | 63 Comments

Another NIH Funding Fact Check

Posted on May 29, 2019 by Jennie Spotila

In April 2019, NIH finally published their funding numbers for ME/CFS research in 2018. That means it is time for another fact-check and correction! Update October 16, 2019: as explained below, I received more accurate numbers from NIH and have … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , , | 16 Comments