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Tag Archives: help
How You Doin’?
How are you in these quaran-times, my friends? My husband and I are doing everything possible to avoid infection because we know how scary COVID-19 can be. I have not left my house for anything except short walks in more … Continue reading →
Posted in Occupying
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Tagged coping, covid-19, crash, family, help, living with, pain, pandemic, PEM, quarantine, sars, suffering, volunteer
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5 Comments
Sacrifice
I’ve lost count of the number of masks I’ve sewn. More than sixty, at least. I was sewing even before the CDC recommended that everyone wear masks, because I knew that my husband and I needed them. When the official … Continue reading →
Posted in Occupying
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Tagged cop, covid-19, crash, help, pain, PEM, quarantine, sars, social isolation, volunteer
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6 Comments
Crisis and Suicide
The list of people with ME who have taken their own lives is too long. Fortunately, there is help available for anyone in crisis, and their loved ones. There are many issues to discuss about suicide and end of life, … Continue reading →
Posted in Occupying
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Tagged community, coping, crisis, death, dying, help, honesty, living with, occupy, pain, psychosocial, resources, speaking out, stress, suffering, suicide, support
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17 Comments
My “Summer Vacation”
What I’ve done on my “summer vacation” has not been fun. I’ve had a rough couple of months. Non-ME health issues have gobbled up most of my capacity, and I’m still feeling the repercussions. I’m not ready to talk about … Continue reading →
Posted in Occupying
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Tagged coping, diagnosis, doctorss, essentials, health care, help, living with, occupy, pacing, preventive, priorities, self-care, stress, suffering, support
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42 Comments
Pretty Much the Worst
One of the worst things someone said to me recently about my disability was: With all the stuff you’re doing, you work just as hard as someone working full time. The charitable and loving way to interpret this statement is: … Continue reading →
Posted in Occupying
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Tagged ableism, coping, disability, exhaustion, help, invisible, living with, occupy, pacing, priorities, stress, suffering
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42 Comments
How To Stay At Home
One thing I have learned during the COVID-19 pandemic is that people with chronic illness have a lot to teach healthy people. We have the skills and hard-earned experience of coping with social isolation and restrictions on what we want … Continue reading →