Tag Archives: funding

NIH RFA Ticker, 1/4/16

Posted on January 4, 2016 by Jennie Spotila

Total RFAs Issued by NIH: 103 (October 2015 to date) Total Dollars Committed to RFAs: $1,431,750,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Beginning RFAs Issued Total Commitment RFAs for ME/CFS 12/28/15 0 … Continue reading →

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NIH RFA Ticker, 12/28/15

Posted on December 28, 2015 by Jennie Spotila

Total RFAs Issued by NIH: 103 (October 2015 to date) Total Dollars Committed to RFAs: $1,431,750,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Ending RFAs Issued Total Commitment RFAs for ME/CFS 12/21/15 3 … Continue reading →

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NIH RFA Ticker, 12/21/15

Posted on December 21, 2015 by Jennie Spotila

Total RFAs Issued by NIH: 99 (October 2015 to date) Total Dollars Committed to RFAs: $1,421,750,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Ending RFAs Issued Total Commitment RFAs for ME/CFS 12/18/15 5 … Continue reading →

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The NIH RFA Ticker

Posted on December 14, 2015 by Jennie Spotila

Today, I’m debuting a new weekly feature that I call the NIH RFA Ticker. My goal is to give you the data you need to help assess whether NIH is doing all it can to promote and fund ME/CFS research. … Continue reading →

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Someone Had To Say It

Posted on November 10, 2015 by Jennie Spotila

A long story about this moment in ME/CFS research and advocacy by journalist Virginia Gewin was published in Mosaic, a publication of the Wellcome Trust today. The article includes a great profile of Dr. Lenny Jason, coverage of the PACE … Continue reading →

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FDA Progress on Measuring Outcomes

Posted on November 9, 2015 by Jennie Spotila

I have an update on the progress of the ME/CFS Outcomes Measures Working Group working with FDA. As I reported in March 2015, the FDA helped convene a Working Group comprised of representatives from FDA, NIH, CDC, and academia in … Continue reading →

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The NIH Plan

Posted on November 4, 2015 by Jennie Spotila

(updated November 9, 2015) Unless you have been avoiding the internet for the last week, you already know that NIH has made a big announcement regarding its plans for ME/CFS research. Dr. Francis Collins has made some remarkable and welcome … Continue reading →

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CFSAC Testimony, Jennie Spotila, August 18, 2015

Posted on August 17, 2015 by Jennie Spotila

Unfortunately, I am too sick to offer public comment by telephone for the August 18-19, 2015 meeting of the CFS Advisory Committee. I submitted these written comments for the record. Thank you to all of the advocates who are speaking … Continue reading →

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CDC: Speculations and Consequences

Posted on August 12, 2015 by Jennie Spotila

Controversy continues over the Senate appropriations committee report’s recommendation that the CDC’s CFS program funding be eliminated for FY 2016. We have certainly debated the merits and faults of the program from just about every angle on this blog. But … Continue reading →

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No CDC Funding for CFS?

Posted on August 4, 2015 by Jennie Spotila

ME/CFS advocates focus almost exclusively on research funding from the National Institutes of Health, and with good reason. But now it appears that funding for the Centers for Disease Control’s CFS program may be at risk in the 2016 appropriations … Continue reading →

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