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Tag Archives: capacity
Waylaid
Almost five years after the first cases of COVID-19 in China, I finally got it. Honestly, I expected this test to be positive for flu. My husband and I had been testing COVID negative on rapid antigen tests for days. … Continue reading →
Posted in Occupying
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Tagged adjusting, capacity, covid-19, living with, Long COVID, pacing, PEM, rest, sick, writing
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9 Comments
Drinking From A Fire Hose
News is coming at the ME community at a crazy pace right now. Each time I go online, there is another controversial article that requires a response. First there was the NPR chronic pain piece and ensuing debacle. Then came … Continue reading →
Posted in Advocacy, Occupying
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Tagged capacity, conference, control, coping, emotional, family, friends, frustration, limitations, Millions Missing, NIH, occupy, overwhelmed, pacing, persistence, post-exertional malaise, priorities, researchers, self-care, stress, survival
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16 Comments
Taking Care of Your Self
Self-care is one of those internet buzzwords that people casually throw around, as if a coloring book or a kitty will solve all your problems. I’m not knocking coloring books and kitties, but generally I think that kind of advice … Continue reading →
Posted in Occupying
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Tagged action, capacity, control, coping, creativity, emotonal, exercise, family, friends, frustration, funny, laugh, limitations, living with, love, music, occupy, pacing, pain, persistence, personal, self-care, spiritual, stress, suffering, survival
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22 Comments