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Tag Archives: ableism
Pandemic Low
I hit a new pandemic low last week. CDC Director Walensky’s comments about the “encouraging” news that most vaccinated people dying of COVID had multiple comorbidities was the catalyst (see my op ed in the Philadelphia Inquirer), but my despair … Continue reading
Posted in Commentary
Tagged ableism, activism, CDC, choices, covid-19, disability, freedom, Long COVID, masks, pandemic, vaccine
15 Comments
How Pandemic Response Measures Harm People With Disabilities
The coronavirus pandemic is reshaping all our lives. With more than six million confirmed infections in the United States, we are living through a seismic cultural event impacting how we work, learn, socialize, and function. For people with disabilities, like … Continue reading
Posted in Commentary
Tagged ableism, accountability, activism, adapting, bias, coping, covid-19, crisis, disability, masks, pandemic, policy, priorities, public health, social isolation
10 Comments
After The Afflicted Freak Show
Many people in the chronic disease community were anticipating Afflicted, the Netflix series about seven people with poorly understood illnesses. In light of Jamison Hill‘s appearance in the show, the ME community hoped to build on the success of Unrest … Continue reading
Posted in Commentary
Tagged ableism, accountability, coping, disability, family, invisible, living with, mental illness, Millions Missing, occupy, pain, prejudice, psychogenic, psychological, psychosocial, speaking out, suffering, visability
18 Comments
Preconditions, Burdens and Ableism
Who are we, as people with ME? Are we “patients”? Are we defined by the disease and its impact on our lives? Which comes first: me or ME? This is a question of identity, and how language can bestow or … Continue reading
Posted in Commentary
Tagged ableism, Denver Principles, disability, health care, identity, language, living with, occupy, politics, protest, respect, speaking out
18 Comments
In The World
I have spent more time in public in the last month than I have in two-and-a-half years. We were having some work done on the house, and I could not stay there in the midst of the noise, dust, and … Continue reading →