Search Results for: NIH

NIH RFA Ticker, 12/21/15

Posted on December 21, 2015 by Jennie Spotila

Total RFAs Issued by NIH: 99 (October 2015 to date) Total Dollars Committed to RFAs: $1,421,750,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 to date) Week Ending RFAs Issued Total Commitment RFAs for ME/CFS 12/18/15 5 … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , | Leave a comment

The NIH RFA Ticker

Posted on December 14, 2015 by Jennie Spotila

Today, I’m debuting a new weekly feature that I call the NIH RFA Ticker. My goal is to give you the data you need to help assess whether NIH is doing all it can to promote and fund ME/CFS research. … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , | 26 Comments

The NIH Plan

Posted on November 4, 2015 by Jennie Spotila

(updated November 9, 2015) Unless you have been avoiding the internet for the last week, you already know that NIH has made a big announcement regarding its plans for ME/CFS research. Dr. Francis Collins has made some remarkable and welcome … Continue reading →

Posted in Advocacy, Commentary, Research | Tagged , , , , , , , , , , , , , , | 23 Comments

2014 NIH Spending on ME/CFS Studies

Posted on March 4, 2015 by Jennie Spotila

Update: This post was revised on October 29, 2016 to correct mathematical errors and update the included research. There is no denying or avoiding the importance of the IOM report and its associated controversies, but ME/CFS advocates must keep eyes … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , | 30 Comments

NIH: Passing ME/CFS Over Again

Posted on December 1, 2014 by Jennie Spotila

NIH will (in its own mind anyway) be showcasing ME/CFS at the P2P Workshop next week. But ME/CFS research at NIH is caught in a never-ending cycle of being passed over in every way that matters. At its June 2014 … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , | 7 Comments

NIH Says No, and Also No

Posted on September 23, 2014 by Jennie Spotila

With no announcement or fanfare, the CFS Advisory Committee has posted a response from HHS to the June 2014 recommendations. My information is that  – inexplicably – even CFSAC members were not notified when the response was posted. I urge … Continue reading →

Posted in Advocacy | Tagged , , , , , , , , , , , | 19 Comments

2013 NIH Spending on CFS Studies

Posted on March 31, 2014 by Jennie Spotila

Update: This post was revised on October 29, 2016 to correct mathematical errors and update the included research. I have positive news to report: NIH spending on ME/CFS  in 2013 was actually higher than it was in 2012. Are you … Continue reading →

Posted in Research | Tagged , , , , , , , , | 27 Comments

2012 NIH Spending on CFS Studies

Posted on May 15, 2013 by Jennie Spotila

Update: This post was revised on October 29, 2016 to correct mathematical errors and update the included research. NIH spending on ME/CFS research has been controversial since I’ve been in advocacy, largely because the funding numbers are so low compared … Continue reading →

Posted in Research | Tagged , , , , , , , , , | 11 Comments

Evidence Based at NIH

Posted on March 21, 2013 by Jennie Spotila

Last year, NIH said it was undertaking a process to identify a research case definition for ME/CFS, but individuals like me were unable to get any additional information about what NIH intended. Now additional information has been made public in … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , | 13 Comments

NIH Collaboration

Posted on December 17, 2012 by Jennie Spotila

The news didn’t make much of a splash, but NIH recently issued a funding opportunity announcement that could benefit people with CFS. This purpose of this funding opportunity is to support “collaborative translational research projects” aimed at turning basic discoveries … Continue reading →

Posted in Research | Tagged , , , , , , , , | Comments Off on NIH Collaboration