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Search Results for: IOM
CFSAC Renewed
As expected, the charter for the CFS Advisory Committee has been renewed for another two years. This has become a routine operation, but the new charter makes some intriguing changes to the CFSAC. I also have new information on potential … Continue reading
Posted in Advocacy
Tagged accountability, action, CFSAC, charter, DHHS, government, politics, priorities, recommendations, researchers, speaking out
11 Comments
Fact Checking, Dr. Nath
This is the first of a two part series. Part One describes the controversy and my fact checking. Part Two will present my analysis of what I found. As part of the renewed focus on ME/CFS at NIH, the National … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, blame, government, NIH, NINDS, participation, politics, psychological, psychosocial, researchers, speaking out, stereotypes
29 Comments
RFA Ticker, 7/11/16
No RFAs for anybody last week. But there was a very interesting Request for Information issued last week that may have implications for ME/CFS research. The RFI requests information that might be useful in “the development of a comprehensive research … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, priorities, researchers, RFA, RFA Ticker, speaking out, spending
15 Comments
Responding to the NIH RFI
For the first time, NIH has requested public input into the future direction of ME/CFS research. This is a chance for researchers, organizations, advocates, and others to provide input directly to the Trans-NIH ME/CFS Working Group on the following questions: … Continue reading
Posted in Advocacy, Research
Tagged action, clinical trials, DHHS, funding, government, grants, NIH, priorities, recommendations, researchers, response, speaking out, strategy
31 Comments
RFA Ticker, 6/6/16
There is an interesting case study among last week’s RFAs. The National Institute of Alcohol Abuse and Alcoholism, along with two other Institutes, issued three RFAs with funding to continue the National Consortium on Alcohol and Neurodevelopment in Adolescence. This … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, priorities, researchers, RFA, RFA Ticker, speaking out, spending
3 Comments
RFA Ticker, 5/30/16
NIH took two steps down the road that leads to more ME/CFS research funding last week, but it’s important to understand what those steps actually mean at this point in time. First, NIH issued a Request for Information: Soliciting Input … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, priorities, researchers, RFA, RFA Ticker, speaking out, spending
22 Comments
CFS Advisory Committee Meeting Outcomes
The CFS Advisory Committee is charged with advising the Secretary of Health and Human Services on issues related to ME/CFS. HHS has a very patchy record in its responses to CFSAC recommendations, but the committee’s public meetings remain highly significant. … Continue reading
Posted in Advocacy
Tagged action, CDC, Centers of Excellence, CFSAC, DHHS, FDA, funding, ME, NIH, politics, priorities, recommendations, SMCI, speaking out, spending, testimony
7 Comments
Staying the Course to Where?
Dr. Francis Collins, Director of the National Institutes of Health, made a request of the ME/CFS community. During the March 8, 2016 NIH telebriefing, Dr. Collins said: So please take our commitment with great seriousness. Please also stay the course … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, biomarkers, case definition, CFSAC, DHHS, drugs, funding, government, grants, NIH, P2P, politics, priorities, recommendations, researchers, RFA, speaking out, spending, treatment
17 Comments
Reality Checking, Dr. Nath
This is the second of a two part series. Part One described the controversy and my fact checking. Part Two presents my analysis of the potential danger to the Clinical Care study. As part of the renewed focus on ME/CFS … Continue reading →