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Author Archives: Jennie Spotila
The Death Threat Myth Exposed
Update April 7, 2021: Further comment from Dr. Vicky Whittemore added to the end of this post. Last week, an old story was recounted to a new audience. During the March 30, 2021 NIH telebriefing with the ME/CFS community, Dr. … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, analysis, bias, experts, FOIA, funding, government, grant review, grants, NIH, prejudice, priorities, recommendations, researchers, RFA, scrutiny, SEP, speaking out, spending, stigma, strategy, transparency
39 Comments
Vaccine Melee
Here’s how I thought the process would work: The federal government would send a supply of vaccine to the state based on population demographics, and the state would send it out to the counties. The counties would control distribution to … Continue reading
Posted in Commentary
Tagged access, chaos, coping, covid-19, hope, living with, masks, pandemic, privilege, public health, quarantine, social isolation, vaccine, virus
5 Comments
Darkness and Light
Today is the winter solstice, the longest night of the year. It’s a time of darkness in a hard winter, but also a time of light as the sun begins to return. Perhaps it is fitting that I face the … Continue reading
NIH Funding for ME in 2020: Falling Flat
The 2020 Numbers Based on currently available numbers, NIH spent $11,696,985 on investigator-initiated grants and the Collaborative Research Centers in FY2020 (see note 1) That is basically flat with 2019 and 2018 spending. Here is how 2020 compared to 2019. … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, accuracy, action, activism, covid-19, funding, government, grants, Millions Missing, NIH, politics, priorities, researchers, RFA, speaking out, spending, transparency
7 Comments
The 2019 NIH Funding Fact Check
NIH claims to have spent $15 million on ME/CFS research in 2019. However, my examination of the details shows that NIH actually spent $13 million, which means NIH is exaggerating its spending by 14%. This gap between reality and NIH’s … Continue reading
Posted in Advocacy, Research
Tagged accountability, accuracy, action, activism, funding, government, grants, NIH, priorities, researchers, RFA, speaking out, spending
11 Comments
David Tuller: Crowdfunding for Us All
I have supported David Tuller’s investigative journalism since he first began his crowdfunding campaigns,* but it has never been more important than right now. I urge you to join me in supporting his current fundraiser not only for yourself, but … Continue reading →