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Search Results for: PACE-Gate
PACE-Gate: Continue Tuller’s Work
Journalist David Tuller is well-known to the ME community. His series Trial By Error on Virology blog launched PACE-Gate into the scientific mainstream. Since that series began, Tuller has also written about the devastating effects of PACE-style “treatments,” garnered support … Continue reading
Posted in Advocacy
Tagged accountability, action, CBT, exercise, funding, GET, PACE, pacing, politics, psychosocial, speaking out, treatment
10 Comments
David Tuller: Crowdfunding for Us All
I have supported David Tuller’s investigative journalism since he first began his crowdfunding campaigns,* but it has never been more important than right now. I urge you to join me in supporting his current fundraiser not only for yourself, but … Continue reading
Posted in Advocacy, Commentary
Tagged accountability, action, antiscience, CBT, CDC, covid-19, exercise, funding, GET, Long COVID, long haulers, PACE, pacing, politics, post-exertional malaise, psychogenic, psychosocial, speaking out, treatment
1 Comment
David Tuller: Making Progress Together
For the past four years, I have supported David Tuller’s investigative journalism through his crowdfunding campaigns. I urge you to join me in supporting his current fundraiser so that he can continue his work. Five years ago this month, David … Continue reading
Posted in Advocacy, Commentary
Tagged accountability, action, CBT, CDC, exercise, funding, GET, PACE, politics, psychogenic, psychosocial, speaking out
Comments Off on David Tuller: Making Progress Together
Return on Investment: David Tuller
When journalist David Tuller asked for crowdfunding in 2017 to support his research and writing on ME for a year, he had already demonstrated his commitment to a rigorous examination of the many problems and issues associated with the PACE … Continue reading
Posted in Advocacy, Commentary
Tagged accountability, action, CBT, CDC, exercise, funding, GET, occupy, PACE, politics, post-exertional malaise, psychosocial, speaking out, treatment
16 Comments
The Truth Is Not Always Nice
My parents used to tell me, “If you can’t say something nice, then don’t say anything at all.” But they also raised me to tell the truth, especially when speaking to authority. I have to say some true things today, … Continue reading
Posted in Advocacy, Commentary
Tagged accountability, action, activism, advocacy, advocacy groups, blame, conspiracy, fatigue, living with, nice, noncompliant, occupy, PACE, pejorative, politics, priorities, researchers, speaking out, stereotypes, tired, truth, voice, Walitt
27 Comments
NIH Attitudes Affect Policy: A Story In Two Parts
The current situation for ME research at NIH is still a problem, despite the fact that the RFAs will increase spending on ME by a significant percentage. I say this based on two things: what the ME field needs to … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, activism, advocacy, anger, blame, Centers of Excellence, funding, government, mental illness, NIH, occupy, politics, psychosocial, researchers, RFA, speaking out, stereotypes
45 Comments
Scandal
Give me 90 minutes. Whoever you are, whatever your connection to or interest in ME/CFS, take 90 minutes to listen to this discussion with academic/journalist David Tuller, DrPH (Lecturer at the School of Public Health and Graduate School of Journalism … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, AHRQ, awareness, case definition, CBT, CDC, exercise, GET, occupy, open data, PACE, pacing, politics, post-exertional malaise, researchers, speaking out, treatment
19 Comments
PACE-Gate
It is International ME/CFS Awareness Day, and what is most on my mind is the status of PACE-Gate: the controversy over the design, conduct and results of the PACE trial. PACE is the largest clinical trial in ME/CFS, and it … Continue reading →