Subscribe to Blog via Email
Pages
-
Recent Posts
Recent Comments
- Jennie Spotila on Getting a Normal Result
- Maureen on Getting a Normal Result
- Kathy Durkin on Getting a Normal Result
- Jennie Spotila on Getting a Normal Result
- Jennie Spotila on Getting a Normal Result
Archives
- October 2024
- September 2024
- January 2024
- December 2023
- November 2023
- October 2023
- September 2023
- June 2023
- December 2022
- November 2022
- October 2022
- August 2022
- May 2022
- February 2022
- January 2022
- December 2021
- November 2021
- October 2021
- September 2021
- August 2021
- May 2021
- April 2021
- March 2021
- February 2021
- December 2020
- November 2020
- October 2020
- September 2020
- July 2020
- June 2020
- April 2020
- March 2020
- February 2020
- January 2020
- November 2019
- August 2019
- June 2019
- May 2019
- April 2019
- March 2019
- February 2019
- January 2019
- November 2018
- October 2018
- September 2018
- August 2018
- July 2018
- June 2018
- May 2018
- April 2018
- March 2018
- February 2018
- January 2018
- December 2017
- November 2017
- October 2017
- September 2017
- August 2017
- July 2017
- June 2017
- May 2017
- April 2017
- March 2017
- February 2017
- January 2017
- December 2016
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- February 2016
- January 2016
- December 2015
- November 2015
- October 2015
- August 2015
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- February 2015
- January 2015
- December 2014
- November 2014
- October 2014
- September 2014
- August 2014
- July 2014
- June 2014
- May 2014
- April 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- October 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- August 2012
- July 2012
- June 2012
- May 2012
- April 2012
- March 2012
- February 2012
Meta
Tags
- accountability
- action
- activism
- biomarkers
- case definition
- CBT
- CDC
- CFIDS Association
- CFSAC
- coping
- covid-19
- CPET
- DHHS
- disability
- drugs
- exercise
- family
- FDA
- funding
- GET
- government
- grants
- IOM
- living with
- Millions Missing
- NIH
- occupy
- orthostatic intolerance
- P2P
- pacing
- pain
- politics
- post-exertional malaise
- priorities
- psychosocial
- recommendations
- researchers
- RFA
- RFA Ticker
- speaking out
- spending
- stress
- suffering
- testimony
- treatment
Tag Archives: stress
Best Laid Plans
This is not the day I planned to come back from my holiday hiatus, nor is this the post I planned for the beginning of a new year. But as they say: “The best laid plans of mice and men … Continue reading →
Posted in Occupying
|
Tagged baseline, coping, gastroenteritis, living with, post-exertional malaise, stress, suffering, virus
|
9 Comments
Insufficient Data
One of the most frustrating aspects of coping with CFS is the lack of definitive data. A PubMed search for “chronic fatigue syndrome” yields 4,877 results (as of today), but as a patient on the front lines I have to … Continue reading →
Posted in Occupying
|
Tagged anaerobic, beta blockers, CFIDS Association, coping, CPET, exercise, GET, heart rate monitor, living with, occupy, orthostatic intolerance, pacing, post-exertional malaise, researchers, stress, treatment
|
21 Comments
In Concert
I went to a concert on Saturday night. I know, right? Given how sick I have been, and how much I have struggled after outings, a concert sounds pretty crazy. In fact, I haven’t been to a concert in many … Continue reading →
Posted in Occupying
|
Tagged coping, disability, joy, living with, music, occupy, pacing, stress, suffering, victory
|
5 Comments
Hurricane Drunk
No walls can keep me protected No sleep, nothing in between me and the rain And you can’t save me now I’m in the grip of a hurricane I’m gonna blow myself away (Florence + the Machine) Hurricane Sandy … Continue reading →
Posted in Occupying
|
Tagged coping, living with, occupy, pacing, post-exertional malaise, stress, suffering
|
3 Comments
Can’t Drive 95
Almost as soon as I had decided to raise the limit on my heart rate monitor to 105 beats per minute, my physical therapy team smacked that idea down. They told me that one week with the monitor was not … Continue reading →
Posted in Occupying
|
Tagged anaerobic, coping, CPET, exercise, heart rate monitor, living with, occupy, pacing, pain, post-exertional malaise, stress, suffering
|
26 Comments
Recoverin’
Three weeks ago, I had my exercise stress tests. A friend had cautioned me that it could take three weeks to recover, and I think she was right although I did sabotage myself a little bit, as I’ll explain. I … Continue reading →
Posted in Occupying
|
Tagged anaerobic, bed rest, bedridden, coping, CPET, exercise, GET, IV fluids, living with, occupy, orthostatic intolerance, pacing, pain, patience, post-exertional malaise, Raggedy Ann, stress, suffering
|
6 Comments
While We Wait
Still waiting for exercise test results. Still waiting for recovery from exercise tests. Still waiting for the brain power to research and write some in depth blog posts I’ve been planning. But life doesn’t give us many breaks, so cue … Continue reading →
Posted in Occupying
|
Tagged coping, living with, occupy, orthostatic intolerance, post-exertional malaise, stress, suffering
|
4 Comments
Puzzle Pieces
Let’s play a game. Imagine you have a large puzzle that makes an Impressionist picture of a colorful cottage-style garden. You can put it together as long as you have the picture on the box. First you assemble the lower … Continue reading →