Tag Archives: RFA

RFA Ticker, 1/9/17

Posted on January 9, 2017 by Jennie Spotila

So. Is anyone surprised that it is January 9th and we do not have the promised RFAs? I didn’t think so. Will we hear an announcement at the CFS Advisory Committee meeting this week? I don’t know. The question that … Continue reading →

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Zero, Zilch, Zippo

Posted on January 2, 2017 by Jennie Spotila

Zero, zilch, zippo, nada, cero, null, nulla, sifr, nul’, ling, nialas, sero, naught. No matter how you say it, we got nothing. Despite the promise in October 2015 that a request for proposals would be issued “soon.” Despite Dr. Collins’s … Continue reading →

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RFA Ticker, 12/26/16

Posted on December 26, 2016 by Jennie Spotila

No Christmas joy for ME/CFS research at NIH. Only two RFAs were issued last week, and neither were the RFAs promised to us. It appears that the RFAs are coming . . . at some point. Dr. Vicky Whittemore told … Continue reading →

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Dr. Collins: Keep Your Promise!

Posted on December 21, 2016 by Jennie Spotila

This is a call to action. I hope you will join me in demanding that Dr. Collins keep NIH’s promise to the ME community. (Edited to add: this action originated with MEAction. I’m just helping to boost the signal.) The … Continue reading →

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RFA Ticker, 12/19/16

Posted on December 19, 2016 by Jennie Spotila

There was a veritable flurry of RFAs last week, with the most issued in any single week since I started tracking last year. But more than halfway through December, the promised RFAs for the ME/CFS research consortium and data center … Continue reading →

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RFA Ticker, 12/12/16

Posted on December 12, 2016 by Jennie Spotila

It’s December and the news we’ve all been waiting for – the announcement of ME/CFS RFAs – has not come. But other things of note have been happening. On the RFA front, NIH has passed half a billion dollars in … Continue reading →

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RFA Ticker, 12/5/16

Posted on December 5, 2016 by Jennie Spotila

The news in the past week was more about NIH generally, rather than ME specifically. President-elect Trump has nominated Representative Tom Price to be Secretary of HHS. This has touched off a war of words within the medical community, as … Continue reading →

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RFA Ticker, 11/28/16

Posted on November 28, 2016 by Jennie Spotila

A short week due to the Thanksgiving holiday doesn’t slow NIH down, apparently. More than $40 million was committed to RFAs last week. ME/CFS research didn’t even get the giblets. Will we be more successful in December? Here are the … Continue reading →

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RFA Ticker, 11/21/16

Posted on November 21, 2016 by Jennie Spotila

The big news (apart from the election, of course) is that Carol Head and Dr. Zaher Nahle of the Solve ME/CFS Initiative had a brief meeting with Dr. Francis Collins, Director of NIH. SMCI reported: Dr. Collins could not offer … Continue reading →

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RFA Ticker, 11/14/16

Posted on November 14, 2016 by Jennie Spotila

It got a bit crazy with NIH last week, didn’t it? The talk by Dr. Shorter went ahead as scheduled on November 9th, much to the chagrin of the entire patient community. Afterwards, NIH issued a follow up response which … Continue reading →

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