Tag Archives: researchers

RFA Ticker, 3/21/16

Posted on March 21, 2016 by Jennie Spotila

I’ve reexamined the RFA data, and found a total of 12 out of 174 RFAs that are actually being funded by FDA. I’ve removed the dollar figures being set aside by FDA from the weekly and overall totals. I also … Continue reading →

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RFA Ticker, 3/14/16

Posted on March 14, 2016 by Jennie Spotila

During the March 8, 2016 NIH conference call with ME/CFS advocates, I asked Dr. Walter Koroshetz of NINDS if he could commit to the community that an RFA would be forthcoming. He said no, and then qualified the answer by … Continue reading →

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RFA Ticker, 3/7/16

Posted on March 7, 2016 by Jennie Spotila

Just one RFA last week, and it wasn’t for ME/CFS. The wait continues. Total RFAs Issued by NIH: 150 (October 2015 to date) Total Dollars Committed to RFAs: $1,612,990,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 … Continue reading →

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We Are All Noncompliant

Posted on March 2, 2016 by Jennie Spotila

I learned something about ME/CFS advocacy from a comic book. Now wait, stay with me. I realize this sounds bizarre, especially coming from me. I haven’t read a comic book since I was eight years old. Enter Bitch Planet, a … Continue reading →

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RFA Ticker, 2/29/16

Posted on February 29, 2016 by Jennie Spotila

Hefty numbers are piling up: we’ve cracked $1.6 billion in RFAs since October 2015, with $30 million being obligated just in the last week. Still nothing for ME/CFS. But hey, NIH is “looking for funding” for ME/CFS initiatives. Imagine a … Continue reading →

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RFA Ticker, 2/22/16

Posted on February 22, 2016 by Jennie Spotila

The RFA Ticker continues to show a big fat ZERO for ME/CFS research, but there is one interesting bit of research-related bit news. NIH has issued an updated notice about the Lipkin samples. These samples were collected as part of … Continue reading →

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2015 NIH Spending on ME/CFS Studies

Posted on February 17, 2016 by Jennie Spotila

Update: This post was revised on October 29, 2016 to correct mathematical errors and update the included research. Since Dr. Collins’s announcement in October 2015 that NIH was renewing its focus on ME/CFS, I’ve been wondering when we would see … Continue reading →

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NIH: Who Reviewed Grants in 2015

Posted on January 28, 2016 by Jennie Spotila

In order to get NIH funding, a researcher has to succeed in several levels of application review. A persistent controversy in the field of ME/CFS is the allegation that grant applications are not reviewed by ME/CFS experts. So let’s take … Continue reading →

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Survey: Barriers to NIH Funding

Posted on January 12, 2016 by Jennie Spotila

Reprinted with permission of Lily Chu: Over the years, IACFS/ME Board members have heard anecdotally from researchers, clinicians, and others that obtaining government-sponsored funding for research related to ME/CFS can be quite challenging, in some cases more challenging than that … Continue reading →

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Add Your Voice to the Call to Investigate PACE

Posted on November 18, 2015 by Jennie Spotila

(reprinted with permission) Twelve U.S. ME/CFS organizations have called on the Centers for Disease Control and Prevention (CDC) and Agency for Health Research & Quality (AHRQ) calling on them to investigate the PACE trial concerns outlined by David Tuller and … Continue reading →

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