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Tag Archives: PACE
Add Your Voice to the Call to Investigate PACE
(reprinted with permission) Twelve U.S. ME/CFS organizations have called on the Centers for Disease Control and Prevention (CDC) and Agency for Health Research & Quality (AHRQ) calling on them to investigate the PACE trial concerns outlined by David Tuller and … Continue reading
Posted in Advocacy
Tagged action, AHRQ, CBT, CDC, exercise, GET, government, PACE, pacing, politics, recommendations, researchers, speaking out
2 Comments
A Request That Should Not Be Ignored
Six scientists have sent a joint letter to the Editor of The Lancet asking for an independent re-analysis of the PACE trial data. The letter, published today on Virology Blog, is signed by Dr. Ron Davis (Stanford), Dr. Jonathan Edwards … Continue reading
Posted in Commentary, Research
Tagged case definition, CBT, GET, PACE, pacing, politics, psychosocial, researchers, speaking out
13 Comments
Systematic Overreaching
A study published last month* by a group from Norway reports a systematic review of ME/CFS case definitions. It’s important because the Institute of Medicine panel is likely conducting a similar process as part of its work, but the study … Continue reading
AAFP Follow Up
After the American Academy of Family Practitioners published an article on CFS in October 2012, Dr. Lucinda Bateman and I submitted a Letter to the Editor. Today, that letter was published and the full version is free online. There is … Continue reading
Posted in Commentary
Tagged AAFP, CBT, coping, exercise, GET, PACE, psychosocial, speaking out
1 Comment
PACE-Gate
It is International ME/CFS Awareness Day, and what is most on my mind is the status of PACE-Gate: the controversy over the design, conduct and results of the PACE trial. PACE is the largest clinical trial in ME/CFS, and it … Continue reading →