Tag Archives: living with

Disaster Voyeurism

Posted on March 16, 2012 by Jennie Spotila

I believe in bearing witness. In many ways, that’s what Occupy CFS is about. Everyone suffers in this life, but bearing witness to another person’s suffering is a sacred act. To bear witness is to absorb the sufferer’s story, to … Continue reading →

Posted in Commentary | Tagged , , , , , , | 1 Comment

Easy (Chick)Peasey

Posted on March 8, 2012 by Jennie Spotila

Once upon a time, there lived a young woman who was a foodie. She loved spending hours over a meal at the dearly departed Striped Bass. She also loved executing multi-course meals that used every pot and pan in the … Continue reading →

Posted in Occupying | Tagged , , , , , , | 4 Comments

App for That

Posted on March 6, 2012 by Jennie Spotila

Dr. Esther Crawley recently announced the availability of a new iPhone app for CFS patients: ActiveME. The app is designed to help patients monitor their activity levels with the goal of identifying “boom and bust” energy cycles. I decided to … Continue reading →

Posted in Commentary | Tagged , , | 9 Comments

I Think I Can

Posted on February 27, 2012 by Jennie Spotila

Today I am feeling like the Little Engine That Almost Can. I’ve been drafting a post about the Lipkin XMRV study, and my own views on whether it should be completed. After much work, and several thousand words, I’m out … Continue reading →

Posted in Commentary, Research | Tagged , , , , | 2 Comments

Testimony to Hearing on Chronic Pain

Posted on February 14, 2012 by Jennie Spotila

Today, the Senate Committee on Health, Education, Labor & Pensions is holding a hearing on chronic pain. This hearing came about through the work of the Chronic Pain Research Alliance.  I was invited to provide written testimony to the hearing … Continue reading →

Posted in Advocacy | Tagged , , , , | 4 Comments