Tag Archives: living with

Spontaneity

Posted on August 2, 2012 by Jennie Spotila

I’ve always been a planner, and living with CFS wreaks havoc on plans. I never know if I’ll be able to follow through on plans, big or small. I missed my cousin’s high school graduation, and at least three weddings … Continue reading →

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Can’t Drive 95

Posted on July 2, 2012 by Jennie Spotila

Almost as soon as I had decided to raise the limit on my heart rate monitor to 105 beats per minute, my physical therapy team smacked that idea down. They told me that one week with the monitor was not … Continue reading →

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CFSAC Testimony of Matthew Lazell-Fairman

Posted on June 21, 2012 by Jennie Spotila

Matthew Lazell-Fairman delivered these comments to the CFS Advisory Committee at its June 14, 2012 meeting. He has kindly given me permission to publish them here. To those responsible for health policy on ME/CFS, I need you to listen and … Continue reading →

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CFSAC Comments from Dr. Lily Chu

Posted on June 13, 2012 by Jennie Spotila

Dr. Lily Chu submitted these written comments to the CFS Advisory Committee for its June 2012 meeting. She has kindly given me permission to publish them here. Dear Sirs and Mesdames, Thank you for this opportunity to address official and … Continue reading →

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Raising the Limit

Posted on May 29, 2012 by Jennie Spotila

I feel like I am getting close to baseline, the state I was in prior to the exercise testing. It’s taken almost seven weeks, and in that time I have left my house a total of seven times – 5 … Continue reading →

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Significance of AT

Posted on May 21, 2012 by Jennie Spotila

Now that my exercise tests are finished and I have the results, it’s time to figure out what to do about it. I’m relying on the work of Staci Stevens, Chris Snell and others at the Pacific Fatigue Lab who … Continue reading →

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And the Envelope, Please

Posted on May 14, 2012 by Jennie Spotila

My exercise test results are in. The numbers were, quite frankly, shocking. Two numbers – VO2max and anaerobic threshold – provide the evidence that I have significant metabolic dysfunction, and I’ll try to explain what they mean. Check out my … Continue reading →

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Be Aware

Posted on May 12, 2012 by Jennie Spotila

Today is ME/CFS Awareness Day. Why May 12th? It is the birthday of Florence Nightingale, who became bedridden with an illness resembling ME/CFS after the Crimean War. From 1860 to her death in 1910, Nightingale continued to work for the … Continue reading →

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Recoverin’

Posted on May 3, 2012 by Jennie Spotila

Three weeks ago, I had my exercise stress tests. A friend had cautioned me that it could take three weeks to recover, and I think she was right although I did sabotage myself a little bit, as I’ll explain. I … Continue reading →

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While We Wait

Posted on April 25, 2012 by Jennie Spotila

Still waiting for exercise test results. Still waiting for recovery from exercise tests. Still waiting for the brain power to research and write some in depth blog posts I’ve been planning. But life doesn’t give us many breaks, so cue … Continue reading →

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