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Tag Archives: CFS
Naming
Do you notice anything different at the top of the page? Occupy CFS is now Occupy M.E. I thought long and hard about the change, and would like to share my reasoning. First of all, CFS is a crappy name. … Continue reading →
Posted in Advocacy, Occupying
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Tagged CFS, encephalomyelitis, living with, ME, ME/CFS, myalgic, name, occupy, politics, speaking out
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26 Comments
Case Definition Bingo
Our disease is plagued by too many case definitions, with the Institute of Medicine’s Systemic Exertion Intolerance Disease (SEID) being the most recent. Our federal agencies are thus far continuing the agnostic position of accepting whatever case definitions are proposed … Continue reading →