Tag Archives: action

RFA Ticker, 9/12/16

Posted on September 12, 2016 by Jennie Spotila

I have to admit, maintaining this RFA Ticker is a bit like watching a train wreck in slow motion. As the fiscal year winds down, and the RFAs slowly shrink in size and number, I keep asking “Will they or … Continue reading →

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RFA Ticker, 9/5/16

Posted on September 4, 2016 by Jennie Spotila

Another light week – a mere $11 million for diseases that are not ME. Cort Johnson reported that NIH is preparing two RFAs, one for collaborative research centers and one for a Data Management Coordinating Center. Marian Emr told me, … Continue reading →

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RFA Ticker, 8/29/16

Posted on August 29, 2016 by Jennie Spotila

Last week was surprisingly light for RFAs. NIH issued five RFAs, setting aside $14.3 million for those projects. One of the RFAs may be of particular interest to the ME community. The National Institute of Neurological Diseases and Stroke issued … Continue reading →

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RFA Ticker, 8/22/16

Posted on August 22, 2016 by Jennie Spotila

As I predicted, last week was another bonanza for RFAs. Another $130 million dollars was set aside, and NIH has now issued $2.6 billion in RFAs this fiscal year. There’s a package for clinical centers and a data coordinating center … Continue reading →

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RFA Ticker, 8/15/16

Posted on August 15, 2016 by Jennie Spotila

It’s a good thing I was forced to write this post lying down, because I might have passed out or thrown up when I saw the RFA totals for last week. Take precautions before you keep reading: NIH issued more … Continue reading →

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RFA Ticker, 8/8/16

Posted on August 8, 2016 by Jennie Spotila

August 8th is Severe ME Day, observed on Sophia Mirza‘s birthday. Today we remember and honor the memory of all ME patients who have left us (and there are too many). We also raise awareness about severe ME, and the … Continue reading →

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Meeting with the Assistant Secretary

Posted on August 5, 2016 by Jennie Spotila

As I mentioned in this week’s RFA Ticker, I participated in a meeting with the Assistant Secretary for Health Dr. Karen DeSalvo. You can read the meeting summary on MEAction, and I’ve reprinted the full text below. From a personal … Continue reading →

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RFA Ticker, 8/1/16

Posted on August 1, 2016 by Jennie Spotila

Alrighty then. Last week? NIH issued more than $128 MILLION in RFAs. NIH has broken the $2.3 billion mark for Fiscal Year 2015. So the same week we found out about activist Tom Jarrett’s suicide? Diseases that are not ME … Continue reading →

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DIY Brain Rehab

Posted on July 28, 2016 by Jennie Spotila

Cognitive difficulties are part and parcel of ME/CFS. Brain fog, memory problems, difficulty with focus and attention, and reduced processing speed are just a few of the deficits we deal with every day. And cognitive effort can cause post-exertional malaise … Continue reading →

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RFA Ticker, 7/25/16

Posted on July 25, 2016 by Jennie Spotila

Well hey, another Monday! And guess what? It’s another Monday with no ME/CFS RFA to report! This is like a bad habit you cannot break. They say that the definition of insanity is repeating the same behavior and expecting a … Continue reading →

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