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Category Archives: Occupying
Getting a Normal Result
It’s been a year since my breast cancer diagnosis. While I feel like I have finally recovered from treatment, that doesn’t mean my cancer experience is over. I am on medication to prevent a recurrence, and of course, I still … Continue reading →
Waylaid
Almost five years after the first cases of COVID-19 in China, I finally got it. Honestly, I expected this test to be positive for flu. My husband and I had been testing COVID negative on rapid antigen tests for days. … Continue reading →
Posted in Occupying
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Tagged adjusting, capacity, covid-19, living with, Long COVID, pacing, PEM, rest, sick, writing
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9 Comments
Hello, Stranger
When I was diagnosed with breast cancer last October, I had grand plans: I would blog through my surgery and whatever treatment followed. I was hungry for examples of other people with ME who had been through cancer treatment, especially … Continue reading →
Enough
I’ve been waiting until I felt well enough to post about my breast cancer surgery and recovery, about the treatment I will begin in January. I have words to say about experiencing the healthcare system as a person with cancer … Continue reading →
“I have cancer”
I told my husband last week, “It’s just as hard to tell people you have cancer as it is to find out you have cancer in the first place.” So, let me take a deep breath and say: I have … Continue reading →
Posted in Occupying
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Tagged cancer, coping, crash, health, life, living with, PEM, persistence, personal, sick, strength, stress, suffering
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56 Comments
29
I got sick on October 6, 1994. Writing a memoir that spans almost three decades requires a lot of self-reflection, not only about what I’ve been through but about the choices I made, what I got wrong, and what I … Continue reading →
Posted in Occupying
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Tagged anniversary, coping, grief, health, life, living with, occupy, persistence, personal, recovery, sick, sickaversary, strength, stress, suffering, triumph, truth
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11 Comments
How to Avoid Covid
For the first time in three weeks, I live in a Covid-free house. Day 0: My husband was the first to get sick. He woke up with severe congestion and a headache, but tested negative for Covid on an antigen … Continue reading →
Posted in Occupying
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Tagged caregiver, covid-19, family, healthcare, living with, masks, occupy, pandemic, self-care, sick
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6 Comments
Ten Years of Unreal Time
Ten years ago today, I tapped the internet microphone and published the very first post on this blog, then known as Occupy CFS. My intention was to step into the light, to bring attention to the disease by writing openly … Continue reading →
Posted in Commentary, Occupying
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Tagged activism, advocacy, coping, living with, Millions Missing, pandemic, prediction, speaking out, visability, writing
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20 Comments
My Favorite Books of 2021
I have always loved books, and now that I am writing one myself, I love them even more. I read for entertainment and education, and I pick them apart to see what makes them work (or not). There is nothing … Continue reading →
In The World
I have spent more time in public in the last month than I have in two-and-a-half years. We were having some work done on the house, and I could not stay there in the midst of the noise, dust, and … Continue reading →