Category Archives: Advocacy

RFA Ticker, 7/18/16

Posted on July 18, 2016 by Jennie Spotila

Last week was awesome for researchers waiting on an RFA . . . at least for non-ME/CFS researchers anyway. NIH issued RFAs totaling more than $75 million, pushing the fiscal year total over the $2.2 billion mark. Life is especially … Continue reading →

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RFA Ticker, 7/11/16

Posted on July 12, 2016 by Jennie Spotila

No RFAs for anybody last week. But there was a very interesting Request for Information issued last week that may have implications for ME/CFS research. The RFI requests information that might be useful in “the development of a comprehensive research … Continue reading →

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Scandal

Posted on July 10, 2016 by Jennie Spotila

Give me 90 minutes. Whoever you are, whatever your connection to or interest in ME/CFS, take 90 minutes to listen to this discussion with academic/journalist David Tuller, DrPH (Lecturer at the School of Public Health and Graduate School of Journalism … Continue reading →

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RFA Ticker, 7/4/16

Posted on July 4, 2016 by Jennie Spotila

We are halfway through the calendar year 2016. There are only three months left in Fiscal Year 2016. We have no RFAs for ME/CFS. Time is slipping away. Total RFAs Issued by NIH: 249 (October 2015 to date) Total Dollars … Continue reading →

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RFA Ticker, 6/27/16

Posted on June 27, 2016 by Jennie Spotila

Did we get an RFA last week from NIH? NOPE. But DON’T WORRY. The NIH just awarded Dr. Fred Friedberg a four-year $1.5 million grant to study the hypothesis that push-crash cycles, daily hassles, and negative life events are associated … Continue reading →

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RFA Ticker, 6/20/16

Posted on June 20, 2016 by Jennie Spotila

Another week, another $20,000,000+ in RFAs, and nothing for ME/CFS. It’s an unfortunate routine. But it bears repeating that we have an opportunity to speak up, and tell NIH what priorities should be the focus of future ME/CFS research. The … Continue reading →

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Responding to the NIH RFI

Posted on June 14, 2016 by Jennie Spotila

For the first time, NIH has requested public input into the future direction of ME/CFS research. This is a chance for researchers, organizations, advocates, and others to provide input directly to the Trans-NIH ME/CFS Working Group on the following questions: … Continue reading →

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RFA Ticker, 6/13/16

Posted on June 13, 2016 by Jennie Spotila

A note about reading the fine print: news circulated last week that NIH was making grants to early-stage investigators of ME/CFS. If you only read the headlines or Twitter, you might think these grants are for research. But they aren’t; … Continue reading →

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RFA Ticker, 6/6/16

Posted on June 6, 2016 by Jennie Spotila

There is an interesting case study among last week’s RFAs. The National Institute of Alcohol Abuse and Alcoholism, along with two other Institutes, issued three RFAs with funding to continue the National Consortium on Alcohol and Neurodevelopment in Adolescence. This … Continue reading →

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RFA Ticker, 5/30/16

Posted on May 30, 2016 by Jennie Spotila

NIH took two steps down the road that leads to more ME/CFS research funding last week, but it’s important to understand what those steps actually mean at this point in time. First, NIH issued a Request for Information: Soliciting Input … Continue reading →

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