Monthly Archives: April 2016

RFA Ticker, 4/25/16

Posted on April 25, 2016 by Jennie Spotila

NIH issued more than $42 million in new RFAs last week. My question is whether RFAs will crack $2 billion before ME/CFS finally gets its own. Total RFAs Issued by NIH: 198 (October 2015 to date) Total Dollars Committed to … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 2 Comments

How I Sleep At Night

Posted on April 22, 2016 by Jennie Spotila

One of the great incongruities of ME/CFS is that despite our bone-crushing brain-stealing fatigue, we are frequently unable to sleep. And if we do sleep, the quality of the sleep is very poor. This quickly sets up an escalating feedback … Continue reading →

Posted in Occupying | Tagged , , , | 35 Comments

RFA Ticker, 4/18/16

Posted on April 18, 2016 by Jennie Spotila

It was a light week for RFAs in general, but NIH still committed almost $7 million to areas that are not ME/CFS. Total RFAs Issued by NIH: 188 (October 2015 to date) Total Dollars Committed to RFAs: $1,914,725,000 (October 2015 … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 4 Comments

RFA Ticker 4/11/16

Posted on April 11, 2016 by Jennie Spotila

Last week, five Institutes announced interest in receiving applications for administrative supplements for existing grants to increase ME/CFS research. Obviously, it’s not the announcement we’ve been waiting for, but it is a step. Let’s take a closer look at how … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 2 Comments

RFA Ticker, 4/4/16

Posted on April 4, 2016 by Jennie Spotila

Last week was a big one for RFA news. NIH issued revised responses to the August 2015 CFS Advisory Committee recommendations. Regarding RFAs, NIH said: “The Trans-NIH ME/CFS Working Group is in the final stages of putting together a comprehensive … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , | 13 Comments

Epic Eye Roll

Posted on April 2, 2016 by Jennie Spotila

I had a shocking experience at a doctor’s office yesterday. It was my first visit to his office for an issue unrelated to ME/CFS. After breezing into the room and making a sarcastic remark about the quality of doctors’ notes … Continue reading →

Posted in Advocacy, Commentary, Occupying | Tagged , , , , , , , , , , | 30 Comments