I will be guest hosting a WEGO Health Twitter chat on Tuesday, June 10th from 3 to 4pm Eastern time. I chose the topic of advocating for yourself when you have a stigmatized chronic disease.
What’s a Twitter chat? Twitter chats are like other chats, but they happen on Twitter. At the appointed time, anyone can follow the chat, and WEGO Health posts a summary or transcript afterwards.
Do I have to join Twitter? You do not have to join Twitter to read the chat. You will have to join if you want to actually participate in the chat.
How do I participate? At 3pm Eastern on June 10th, go to the Tweet chat room and see what people are saying. If you have a Twitter account, you can sign in on the chat page to participate in the conversation. Alternatively, just go to Twitter and read the Tweets tagged #hachat. The Tweet chat room is much easier, trust me.
What is this chat about? I chose the topic of advocating for yourself when you have a stigmatized chronic disease, and we’ll talk about the challenges of doing that in healthcare, family and political settings.
What’s the point? Getting the word out!!! There’s a huge audience out there that does not understand ME/CFS. While WEGO Health asked me to make the discussion questions applicable to more than one disease, I will definitely use ME/CFS as an example during the chat.
I hope you will join me and share your own experiences with this broader audience!
Added June 17, 2014, the transcript to the full chat is now available.
Thank you for doing this, and your continual activism and organizing on behalf of all of us who suffer from ME/CFS.
I am not on Twitter and can’t figure out how to see this discussion. I have no wish to weigh in, as I trust everyone who writes and speaks on this disease to add to the knowledge and awareness out there in cyberspace.
Best wishes and thanks to everyone.
Kathy, I think that if you use the link below at 3pm Eastern tomorrow you should be able to follow along with the chat:
http://tweetchat.com/room/hachat
Was so sorry to have missed the Chat, really wanted to. But my sleep disorder had me awake until 11 a.m., and in desperation I finally fell asleep only to have awakened after the chat!
If any new points were raised — or if the chat is still posted — please let us know.
This sleep disorder is the bane of my existence, even with medication, which isn’t working much of the time.
You should be able to see the chat here: http://tweetchat.com/room/hachat
A transcript might be posted by WEGO Health in a few days.
I couldn’t access the chat. Please let us know if you see a transcript posted.
Your work is appreciated.
Here is the full transcript! https://storify.com/wegohealth/health-activist-twitter-chat-advocating-for-your-s#publicize