Quick Announcement

Finally (!) I am able to share the news that I’ve been invited to serve on a panel at the upcoming FDA Drug Development for ME/CFS Workshop. I’ve wanted to announce this for awhile, but panelists were asked not to publicize their participation.

I’m serving on a panel with clinicians and other patients to talk about symptoms, treatments, and possible outcome measures. The agenda and speaker list for the meeting should be released soon, and I’ll be writing more about the meeting in the coming weeks. I’m honored to be included on a panel of distinguished experts, and to have the opportunity to give voice to patients’ experiences.

More news to come . . . .


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7 Responses to Quick Announcement

  1. Katrina Berne says:

    Jennie, I’m delighted that you’ll be on the panel. I can think of no better patient advocate than you.

  2. Libby Boone says:

    Good Jennie.

    Just want to draw your attention to an excellent blog I have recently discovered. One salient feature is the author’s push to have a focus on the study of the severely ill, rather than those who are usually able to participate in studies.
    He makes very compelling points.
    Best of luck to you, and thanks.


  3. Faith Wong says:

    I, too, am delighted that you will serve on the panel!

  4. Matina Nicholson says:


  5. Fantastic, its great to know that you’ll be there for us! Thank you so much for your time, effort and commitment! The knowlege that you’ll be there brings me hope!

  6. Shar Childers says:

    This is good news. Congratulations!

  7. Jennie Spotila says:

    Thanks everyone! I hope I can represent the diversity of our experiences.

Comments are closed.