Sing with it with me: It’s the most challenging time of the year!
Some CFS patients I know feel like summer is the most challenging time, between the heat and kids being off school. For me, it’s the holidays. Every year, I try to adjust my expectations and scale back on what I try to do. And every year, there is at least one day that has me on the verge of sitting in a corner, rocking back and forth and muttering about glitter.
The queue of blog posts I want to write currently stands at seventeen, and some are more time-sensitive than others. There is also the FDA meeting on Ampligen this week. But in service to my efforts to pace my activities and be realistic about my capacity, I’ve decided those posts will have to wait. I want to keep writing for you, and some of the upcoming posts are important. But I need to spend time with my family, too. And I would really like to get to New Year’s Day and not need the entire month of January to recover from the holidays.
So I hope you will be patient with me, and that you’ll come back in a few weeks when I start posting again. I wish you a joyous holiday season, and a Happy and HEALTHY New Year for us all!
And a VERY MERRY CHRISTMAS AND HAPPY, HEALTHY NEW YEAR to you too Jennie…
Happy holidays and Happy New Year! I look forward to the blog posts in 2013 – thank you for keeping us updated and sorting things out for us in such a great way.
Same here, Jennie. I too have had to abandon several blog posts which I wanted to write and it’s so frustrating. But, like you, I know I have to stop for a while and just go with the spirit of the festive season and use the time to regroup a little.
I wish you a peaceful and joyous Christmas and a healthier, bloggin’ 2013 🙂
Very best wishes – Valerie
Glad you’re taking a little time off, Jennie — I certainly don’t want you rocking in the corner and muttering about glitter……
Happiest of holidays to you and your family. I look forward to your posts in the new year!
(cue my Gollum imitation) It’s … glitter, Precious!
This holiday season for me was spiraling back down the previously-visited stages of grief: I forgot about acceptance and spent a lot of time in denial and anger. The upside is I made myself a list for next year – to focus on what is most important and thoughtfully create a plan for having those things happen.
Happy New Year, Jennie & Family!
I need to do the same, Vickie!
Jennie, I need to get in touch with you! I am writing a set of little books for ME people, the first is now up on Kindle – A Beginner’s Guide to ME/CFS – I’ve made it as simple and cheap as possible – we need to be helped to rest, and feel OK about resting.
Also Les Simpsom’s research offers some helpful stuff.
But my bandwagon is that our muscle metabolism isn’t working properly which means that muscular exertion is really damaging – I’ve sat in the Invest in ME Conference here in London listening to researchers talking about giving exercise tests to people with ME and thought ‘what are they doing!!!!’ Your blog about the exercise test just really gives such an extreme, telling example – of you courageously pushing your limits – with zero aerobic metabolism – and the terrible, long-term consequences. It could not make my point more tellingly. I have included a reference to that blog in the first book, but I am going to write more – and I think these researchers need to question the ethics of what they are doing, although their intentions are the best. Could we get directly in touch/would you be willing to have that whole blog, or big sections of it, quoted in a future ‘Beginner’s Guide’? (‘A Beginner’s Guide to Research Projects’…health warning…I don’t know. I’d love to collaborate. Have been encouraged, with only a few sales, by two letters from people who were extremely grateful for my perspective, and a five-star review by someone who studies the literature well, and is damning about the whole Wessley school approach – it’s worth doing, we must get the word out there.. If you are at all interested, I will send you a copy when it is available in print…Best wishes Nancy