Tag Archives: spending

RFA Ticker, 7/4/16

We are halfway through the calendar year 2016. There are only three months left in Fiscal Year 2016. We have no RFAs for ME/CFS. Time is slipping away. Total RFAs Issued by NIH: 249 (October 2015 to date) Total Dollars … Continue reading

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RFA Ticker, 6/27/16

Did we get an RFA last week from NIH? NOPE. But DON’T WORRY. The NIH just awarded Dr. Fred Friedberg a four-year $1.5 million grant to study the hypothesis that push-crash cycles, daily hassles, and negative life events are associated … Continue reading

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RFA Ticker, 6/20/16

Another week, another $20,000,000+ in RFAs, and nothing for ME/CFS. It’s an unfortunate routine. But it bears repeating that we have an opportunity to speak up, and tell NIH what priorities should be the focus of future ME/CFS research. The … Continue reading

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RFA Ticker, 6/13/16

A note about reading the fine print: news circulated last week that NIH was making grants to early-stage investigators of ME/CFS. If you only read the headlines or Twitter, you might think these grants are for research. But they aren’t; … Continue reading

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RFA Ticker, 6/6/16

There is an interesting case study among last week’s RFAs. The National Institute of Alcohol Abuse and Alcoholism, along with two other Institutes, issued three RFAs with funding to continue the National Consortium on Alcohol and Neurodevelopment in Adolescence. This … Continue reading

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RFA Ticker, 5/30/16

NIH took two steps down the road that leads to more ME/CFS research funding last week, but it’s important to understand what those steps actually mean at this point in time. First, NIH issued a Request for Information: Soliciting Input … Continue reading

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RFA Ticker, 5/23/16

NIH issued only two RFAs last week, but last week we learned much more about what is coming for ME/CFS. As I explained in my summary of the CFS Advisory Committee, Dr. Vicky Whittemore reported that she will be presenting … Continue reading

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CFS Advisory Committee Meeting Outcomes

The CFS Advisory Committee is charged with advising the Secretary of Health and Human Services on issues related to ME/CFS. HHS has a very patchy record in its responses to CFSAC recommendations, but the committee’s public meetings remain highly significant. … Continue reading

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RFA Ticker, 5/16/16

NIH cracked the $2 billion mark in RFAs, but there are still #MillionsMissing in essential research dollars for ME/CFS. Total RFAs Issued by NIH: 221 (October 2015 to date) Total Dollars Committed to RFAs: $2,029,040,000 (October 2015 to date) Total … Continue reading

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#MillionsMissing

For as long as I have been an ME/CFS advocate, I have heard people say we should protest/take to the streets/be more like ACT UP. But for the most part, demonstrations have been small (even one woman) shows. That is … Continue reading

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