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Tag Archives: spending
RFA Ticker, 9/5/16
Another light week – a mere $11 million for diseases that are not ME. Cort Johnson reported that NIH is preparing two RFAs, one for collaborative research centers and one for a Data Management Coordinating Center. Marian Emr told me, … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
3 Comments
RFA Ticker, 8/29/16
Last week was surprisingly light for RFAs. NIH issued five RFAs, setting aside $14.3 million for those projects. One of the RFAs may be of particular interest to the ME community. The National Institute of Neurological Diseases and Stroke issued … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
1 Comment
RFA Ticker, 8/22/16
As I predicted, last week was another bonanza for RFAs. Another $130 million dollars was set aside, and NIH has now issued $2.6 billion in RFAs this fiscal year. There’s a package for clinical centers and a data coordinating center … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
6 Comments
RFA Ticker, 8/15/16
It’s a good thing I was forced to write this post lying down, because I might have passed out or thrown up when I saw the RFA totals for last week. Take precautions before you keep reading: NIH issued more … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
10 Comments
RFA Ticker, 8/8/16
August 8th is Severe ME Day, observed on Sophia Mirza‘s birthday. Today we remember and honor the memory of all ME patients who have left us (and there are too many). We also raise awareness about severe ME, and the … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, severe, speaking out, spending
7 Comments
Meeting with the Assistant Secretary
As I mentioned in this week’s RFA Ticker, I participated in a meeting with the Assistant Secretary for Health Dr. Karen DeSalvo. You can read the meeting summary on MEAction, and I’ve reprinted the full text below. From a personal … Continue reading
Posted in Advocacy
Tagged accountability, action, activism, DHHS, funding, government, living with, Millions Missing, occupy, politics, priorities, recommendations, researchers, speaking out, spending, team work
18 Comments
RFA Ticker, 8/1/16
Alrighty then. Last week? NIH issued more than $128 MILLION in RFAs. NIH has broken the $2.3 billion mark for Fiscal Year 2015. So the same week we found out about activist Tom Jarrett’s suicide? Diseases that are not ME … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
10 Comments
RFA Ticker, 7/25/16
Well hey, another Monday! And guess what? It’s another Monday with no ME/CFS RFA to report! This is like a bad habit you cannot break. They say that the definition of insanity is repeating the same behavior and expecting a … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
8 Comments
RFA Ticker, 7/18/16
Last week was awesome for researchers waiting on an RFA . . . at least for non-ME/CFS researchers anyway. NIH issued RFAs totaling more than $75 million, pushing the fiscal year total over the $2.2 billion mark. Life is especially … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
4 Comments
RFA Ticker, 7/11/16
No RFAs for anybody last week. But there was a very interesting Request for Information issued last week that may have implications for ME/CFS research. The RFI requests information that might be useful in “the development of a comprehensive research … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, priorities, researchers, RFA, RFA Ticker, speaking out, spending
15 Comments