Tag Archives: politics

RFA Ticker, 4/18/16

Posted on April 18, 2016 by Jennie Spotila

It was a light week for RFAs in general, but NIH still committed almost $7 million to areas that are not ME/CFS. Total RFAs Issued by NIH: 188 (October 2015 to date) Total Dollars Committed to RFAs: $1,914,725,000 (October 2015 … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 4 Comments

RFA Ticker, 4/4/16

Posted on April 4, 2016 by Jennie Spotila

Last week was a big one for RFA news. NIH issued revised responses to the August 2015 CFS Advisory Committee recommendations. Regarding RFAs, NIH said: “The Trans-NIH ME/CFS Working Group is in the final stages of putting together a comprehensive … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , | 13 Comments

RFA Ticker, 3/28/16

Posted on March 28, 2016 by Jennie Spotila

As I mentioned last week, these numbers apply to NIH issued RFAs only, not FDA or other agency-funded RFAs. Also, I think it might help to review some terminology. “RFA” stands for a Request for Applications. This mechanism sets money … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 11 Comments

RFA Ticker, 3/21/16

Posted on March 21, 2016 by Jennie Spotila

I’ve reexamined the RFA data, and found a total of 12 out of 174 RFAs that are actually being funded by FDA. I’ve removed the dollar figures being set aside by FDA from the weekly and overall totals. I also … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 2 Comments

RFA Ticker, 3/14/16

Posted on March 14, 2016 by Jennie Spotila

During the March 8, 2016 NIH conference call with ME/CFS advocates, I asked Dr. Walter Koroshetz of NINDS if he could commit to the community that an RFA would be forthcoming. He said no, and then qualified the answer by … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 27 Comments

RFA Ticker, 3/7/16

Posted on March 7, 2016 by Jennie Spotila

Just one RFA last week, and it wasn’t for ME/CFS. The wait continues. Total RFAs Issued by NIH: 150 (October 2015 to date) Total Dollars Committed to RFAs: $1,612,990,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 2 Comments

We Are All Noncompliant

Posted on March 2, 2016 by Jennie Spotila

I learned something about ME/CFS advocacy from a comic book. Now wait, stay with me. I realize this sounds bizarre, especially coming from me. I haven’t read a comic book since I was eight years old. Enter Bitch Planet, a … Continue reading →

Posted in Advocacy, Commentary | Tagged , , , , , , , , , , , , , , , , , , , | 20 Comments

RFA Ticker, 2/29/16

Posted on February 29, 2016 by Jennie Spotila

Hefty numbers are piling up: we’ve cracked $1.6 billion in RFAs since October 2015, with $30 million being obligated just in the last week. Still nothing for ME/CFS. But hey, NIH is “looking for funding” for ME/CFS initiatives. Imagine a … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 8 Comments

RFA Ticker, 2/22/16

Posted on February 22, 2016 by Jennie Spotila

The RFA Ticker continues to show a big fat ZERO for ME/CFS research, but there is one interesting bit of research-related bit news. NIH has issued an updated notice about the Lipkin samples. These samples were collected as part of … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 6 Comments

2015 NIH Spending on ME/CFS Studies

Posted on February 17, 2016 by Jennie Spotila

Update: This post was revised on October 29, 2016 to correct mathematical errors and update the included research. Since Dr. Collins’s announcement in October 2015 that NIH was renewing its focus on ME/CFS, I’ve been wondering when we would see … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , | 12 Comments