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Tag Archives: NIH
The 2020 NIH Funding Fact Check
It is time, once again, for my annual NIH funding fact check. And, once again, NIH’s numbers do not add up. NIH claims to have spent $15 million on ME/CFS research in 2020. In reality, NIH spent slightly under $13 … Continue reading
Posted in Advocacy, Research
Tagged accountability, accuracy, action, activism, funding, government, grants, NIH, priorities, researchers, speaking out, spending, transparency
7 Comments
NIH Funding for ME in 2020: Falling Flat
NIH funding for ME/CFS research should be increasing each year. Everyone agrees that this is needed. Instead, 2020 funding has flatlined. Worse yet, we are in danger of falling off several cliffs looming ahead. Image credit: Off the Charts, AJN … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, accuracy, action, activism, covid-19, funding, government, grants, Millions Missing, NIH, politics, priorities, researchers, RFA, speaking out, spending, transparency
7 Comments
The 2019 NIH Funding Fact Check
NIH claims to have spent $15 million on ME/CFS research in 2019. However, my examination of the details shows that NIH actually spent $13 million, which means NIH is exaggerating its spending by 14%. This gap between reality and NIH’s … Continue reading
Posted in Advocacy, Research
Tagged accountability, accuracy, action, activism, funding, government, grants, NIH, priorities, researchers, RFA, speaking out, spending
11 Comments
NIH Funding for ME Needs Life Support
Fiscal year 2019 is over, and we can now examine how much NIH spent on ME research. In previous years, I’ve broken down the funding at a granular level. I have done that in a separate post for those who … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, activism, conference, council, funding, government, grants, Millions Missing, NIH, occupy, politics, priorities, researchers, RFA, speaking out, spending
2 Comments
NIH Funding for ME in 2019: The Details
Every year, I take a careful look at the funding that NIH reports it spent on ME research. Normally, this is mostly a number crunching exercise, but this year I wrote an entire post about a serious problem I discovered … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, biomarkers, funding, government, grants, NIH, pathogenesis, politics, priorities, researchers, RFA, speaking out, spending, suffering, treatment
12 Comments
Another NIH Funding Fact Check
In April 2019, NIH finally published their funding numbers for ME/CFS research in 2018. That means it is time for another fact-check and correction! Update October 16, 2019: as explained below, I received more accurate numbers from NIH and have … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, activism, funding, government, grants, NIH, occupy, politics, priorities, researchers, RFA, speaking out, spending
16 Comments
I Want To Believe Dr. Collins, But I Don’t
Dr. Francis Collins, Director of the National Institutes of Health, spoke to the ME community earlier this month at the meeting on Accelerating Research on ME/CFS. For the ten minutes he was present, Dr. Collins said a lot of nice … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, Collins, funding, government, grants, Millions Missing, NIH, politics, priorities, recommendations, researchers, RFA, speaking out, spending
24 Comments
Dr. Collins: Transcript of Remarks on April 5, 2019
Dr. Francis Collins addressed the Accelerating Research in ME/CFS meeting for ten minutes this morning. This is my best effort at a transcript of those comments. Thank you, Walter. I’m really glad to be able to be here for at … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, biomarkers, case definition, collaboration, Collins, drugs, funding, government, hope, IOM, meeting, NIH, politics, priorities, researchers, strategy, transcript
19 Comments
NIH Deadlines
In the next two weeks, there are three important opportunities for the ME community to engage with NIH. April 4th and 5th: NIH is hosting the Accelerating Research on ME/CFS Meeting. Take a look at the agenda and invited speakers. … Continue reading
Posted in Advocacy, Research
Tagged action, government, Millions Missing, NIH, priorities, recommendations, researchers, response, speaking out, strategy
Comments Off on NIH Deadlines
The Death Threat Myth Exposed
Update April 7, 2021: Further comment from Dr. Vicky Whittemore added to the end of this post. Last week, an old story was recounted to a new audience. During the March 30, 2021 NIH telebriefing with the ME/CFS community, Dr. … Continue reading →