Tag Archives: government

The Holy Grail

Posted on March 1, 2012 by Jennie Spotila

Many CFS patients are holding their breath awaiting the results of the multiple lab XMRV study, nicknamed the Lipkin study after its coordinator Dr. Ian Lipkin of the Center for Infection and Immunity. I am not one of them.  I … Continue reading →

Posted in Commentary, Research | Tagged , , , , , | 13 Comments

I Think I Can

Posted on February 27, 2012 by Jennie Spotila

Today I am feeling like the Little Engine That Almost Can. I’ve been drafting a post about the Lipkin XMRV study, and my own views on whether it should be completed. After much work, and several thousand words, I’m out … Continue reading →

Posted in Commentary, Research | Tagged , , , , | 2 Comments

Speak Up About ME

Posted on February 21, 2012 by Jennie Spotila

I have devoted substantial energy in the last several years to following the work of, and preparing testimony to, the CFS Advisory Committee to the Department of Health and Human Services. The committee exists to advise the Department on CFS … Continue reading →

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Not Just Us

Posted on February 15, 2012 by Jennie Spotila

The Senate Health, Education, Labor & Pension Committee hearing on Pain in America (read a summary here  or watch the hearing here) made me realize something: it is not just the CFS community that has to struggle against psychogenic arguments … Continue reading →

Posted in Advocacy, Commentary | Tagged , , , , | 5 Comments

Testimony to Hearing on Chronic Pain

Posted on February 14, 2012 by Jennie Spotila

Today, the Senate Committee on Health, Education, Labor & Pensions is holding a hearing on chronic pain. This hearing came about through the work of the Chronic Pain Research Alliance.  I was invited to provide written testimony to the hearing … Continue reading →

Posted in Advocacy | Tagged , , , , | 4 Comments