Tag Archives: government

Passing of Dr. William Reeves

Posted on August 3, 2012 by Jennie Spotila

Unexpected news came today that Dr. William Reeves passed away last night. Dr. Reeves was head of the CDC’s CFS program from 1992 through 2010, and was a polarizing figure both inside and outside the agency. Others have chronicled the … Continue reading →

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NIH Funding and the XMRV Effect

Posted on July 31, 2012 by Jennie Spotila

The largest pool of money available for investigator-initiated CFS research grants is the NIH. Although miniscule relative to other areas of research, $6 million a year is the largest annual research investment in CFS from any source. Given the significance … Continue reading →

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CFSAC Charter Input

Posted on July 23, 2012 by Jennie Spotila

Today, six advocates and myself joined together to send the following letter to Assistant Secretary for Health Howard Koh regarding the recent vacancy on the CFS Advisory Committee and a proposed change to the Committee’s charter.   Dear Dr. Koh, … Continue reading →

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2011 NIH Spending on CFS Studies

Posted on July 16, 2012 by Jennie Spotila

At the June 2012 CFS Advisory Committee meeting, Dr. Susan Maier from the NIH Office of Research on Women’s Health reported that NIH funding of CFS research in 2011 totaled $6.3 million. In the past, advocates have questioned whether studies … Continue reading →

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CFSAC Vacancy: One Down

Posted on July 10, 2012 by Jennie Spotila

Within the last week, there has been a change to the CFS Advisory Committee roster. Dr. Jacqueline Rose, who joined the committee on June 13, 2012, is no longer a member of the committee. Dr. Rose was described at the … Continue reading →

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CFSAC Profile: Dr. Lisa Corbin

Posted on July 9, 2012 by Jennie Spotila

The second in a series of profiles of the new members of the CFS Advisory Committee. Four new members were recently appointed to the CFS Advisory Committee.  In previous years, members such as Drs. Jason, Klimas and Snell were well-known … Continue reading →

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The Fine Print

Posted on July 5, 2012 by Jennie Spotila

Earlier this month, I told the CFS Advisory Committee to keep track and keep asking about how DHHS was responding to its recommendations. I discussed four recommendations in detail, including: Regarding your recommendation that HHS engage the expertise of the … Continue reading →

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CFSAC Profile: Dr. Adrian Casillas

Posted on June 26, 2012 by Jennie Spotila

The first in a series of profiles of the new members of the CFS Advisory Committee. Four new members were recently appointed to the CFS Advisory Committee.  In previous years, members such as Drs. Jason, Klimas and Snell were well-known … Continue reading →

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Joint Request for Action

Posted on June 22, 2012 by Jennie Spotila

I joined in this effort by advocacy groups and individuals to secure a meaningful response to CFS from the Department of Health and Human Services. This letter was sent to Secretary Sibelius and others on June 5th. The coalition of … Continue reading →

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CFSAC Testimony of Matthew Lazell-Fairman

Posted on June 21, 2012 by Jennie Spotila

Matthew Lazell-Fairman delivered these comments to the CFS Advisory Committee at its June 14, 2012 meeting. He has kindly given me permission to publish them here. To those responsible for health policy on ME/CFS, I need you to listen and … Continue reading →

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