Tag Archives: government

AHRQ Evidence Review Changes Its Conclusions

Posted on August 16, 2016 by Jennie Spotila

Mary Dimmock has led the way on this issue, and is co-author of this post. In response to requests by U.S. patient organizations and advocates, the U.S. Agency for Healthcare Research and Quality (AHRQ) has issued an Addendum to its … Continue reading →

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RFA Ticker, 8/15/16

Posted on August 15, 2016 by Jennie Spotila

It’s a good thing I was forced to write this post lying down, because I might have passed out or thrown up when I saw the RFA totals for last week. Take precautions before you keep reading: NIH issued more … Continue reading →

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RFA Ticker, 8/8/16

Posted on August 8, 2016 by Jennie Spotila

August 8th is Severe ME Day, observed on Sophia Mirza‘s birthday. Today we remember and honor the memory of all ME patients who have left us (and there are too many). We also raise awareness about severe ME, and the … Continue reading →

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Meeting with the Assistant Secretary

Posted on August 5, 2016 by Jennie Spotila

As I mentioned in this week’s RFA Ticker, I participated in a meeting with the Assistant Secretary for Health Dr. Karen DeSalvo. You can read the meeting summary on MEAction, and I’ve reprinted the full text below. From a personal … Continue reading →

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RFA Ticker, 8/1/16

Posted on August 1, 2016 by Jennie Spotila

Alrighty then. Last week? NIH issued more than $128 MILLION in RFAs. NIH has broken the $2.3 billion mark for Fiscal Year 2015. So the same week we found out about activist Tom Jarrett’s suicide? Diseases that are not ME … Continue reading →

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RFA Ticker, 7/25/16

Posted on July 25, 2016 by Jennie Spotila

Well hey, another Monday! And guess what? It’s another Monday with no ME/CFS RFA to report! This is like a bad habit you cannot break. They say that the definition of insanity is repeating the same behavior and expecting a … Continue reading →

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RFA Ticker, 7/18/16

Posted on July 18, 2016 by Jennie Spotila

Last week was awesome for researchers waiting on an RFA . . . at least for non-ME/CFS researchers anyway. NIH issued RFAs totaling more than $75 million, pushing the fiscal year total over the $2.2 billion mark. Life is especially … Continue reading →

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RFA Ticker, 7/11/16

Posted on July 12, 2016 by Jennie Spotila

No RFAs for anybody last week. But there was a very interesting Request for Information issued last week that may have implications for ME/CFS research. The RFI requests information that might be useful in “the development of a comprehensive research … Continue reading →

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RFA Ticker, 7/4/16

Posted on July 4, 2016 by Jennie Spotila

We are halfway through the calendar year 2016. There are only three months left in Fiscal Year 2016. We have no RFAs for ME/CFS. Time is slipping away. Total RFAs Issued by NIH: 249 (October 2015 to date) Total Dollars … Continue reading →

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RFA Ticker, 6/27/16

Posted on June 27, 2016 by Jennie Spotila

Did we get an RFA last week from NIH? NOPE. But DON’T WORRY. The NIH just awarded Dr. Fred Friedberg a four-year $1.5 million grant to study the hypothesis that push-crash cycles, daily hassles, and negative life events are associated … Continue reading →

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