Tag Archives: funding

CFSAC Takeaways

Posted on June 18, 2012 by Jennie Spotila

I won’t attempt a comprehensive writeup of the recent CFS Advisory Committee meeting. This meeting was one of the most thoroughly covered: on Twitter (#CFSAC), real-time reports from Phoenix Rising, and a writeup by Tina Tidmore. Instead, I offer comments … Continue reading →

Posted in Advocacy, Commentary | Tagged , , , , , , , , , , , | 9 Comments

Deal With It

Posted on May 24, 2012 by Jennie Spotila

The CFS Advisory Committee will hold its next meeting on June 13-14th. This is the text of the public comment I offered at the previous meeting on October 25, 2011.   I ask the voting members of this committee: do … Continue reading →

Posted in Advocacy | Tagged , , , , , , , , , | Comments Off on Deal With It

The Holy Grail

Posted on March 1, 2012 by Jennie Spotila

Many CFS patients are holding their breath awaiting the results of the multiple lab XMRV study, nicknamed the Lipkin study after its coordinator Dr. Ian Lipkin of the Center for Infection and Immunity. I am not one of them.  I … Continue reading →

Posted in Commentary, Research | Tagged , , , , , | 13 Comments

Virtually Reality

Posted on February 23, 2012 by Jennie Spotila

Today, the CFIDS Association announces its latest research grants and projects. I know many of us want to dive into the details of the grants, but I want to first take a look at the big picture. The Association describes … Continue reading →

Posted in Research | Tagged , , , , , , , , , | 4 Comments

Diverse and Coordinated

Posted on February 23, 2012 by Jennie Spotila

Today, the CFIDS Association announced five new research grants as part of its “institute without walls” CFS research program.* The Association has funded more CFS research than any other non-profit to date, and expectations are high following on the success … Continue reading →

Posted in Research | Tagged , , , , , , , , , , , , | Comments Off on Diverse and Coordinated