Tag Archives: clinical trials

Responding to the NIH RFI

Posted on June 14, 2016 by Jennie Spotila

For the first time, NIH has requested public input into the future direction of ME/CFS research. This is a chance for researchers, organizations, advocates, and others to provide input directly to the Trans-NIH ME/CFS Working Group on the following questions: … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , | 31 Comments

#MillionsMissing

Posted on May 10, 2016 by Jennie Spotila

For as long as I have been an ME/CFS advocate, I have heard people say we should protest/take to the streets/be more like ACT UP. But for the most part, demonstrations have been small (even one woman) shows. That is … Continue reading →

Posted in Advocacy | Tagged , , , , , , , , , , , , , , , , , , | 9 Comments

Ampligen is Not AZT

Posted on February 11, 2013 by Jennie Spotila

In recent weeks, some ME/CFS advocates have been calling for NIH to conduct a clinical trial of Ampligen based on the reasoning that NIH conducted trials of AZT during the early years of the AIDS crisis. Unfortunately, this analogy does … Continue reading →

Posted in Advocacy, Commentary | Tagged , , , , , , , , , , | 10 Comments